Muscle spasms and leg cramps

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

MustLoveDogs
Regular Member


Date Joined Jan 2009
Total Posts : 394
   Posted 4/30/2009 10:29 PM (GMT -6)   
My daughter has been having terrible pain in her right knee.  From what she describes it sounds like a muscle spasm that goes down into her calf.  Are those with UC or Crohn's more likely to have muscle spasms?  I know some vitamin deficiences can cause this but how do we find out?  Or could it be "growing pains" ?  She has grown over an inch in the last 5 months and put on about 15 lbs (she was VERY tiny before being diagnosed)
 
HELP!
Gwen
 
10 yr old daughter diagnosed with "UC-like Crohn's" 12/08
2nd opinion March 2009 - diagnosis UC and not Crohn's
 
currently on 2400 mg Asacol & Rowasa 1x day


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 4/30/2009 11:05 PM (GMT -6)   
Is she on any medications? I got painful muscle spasms when I was taking Prednisone. The muscle spasms were due to an imbalance in electrolytes--sodium, magnesium, potassium and chloride. Prednisone depletes magnesium and potassium. I eat bananas almost every day. Bananas are also part of the BRAT and BRATTY diets, which help diarrhea. I each spinach almost every day and sunflower seed butter occasionally. Spinach and sunflower seeds are high in magnesium. They also are anti-inflammatory.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


MustLoveDogs
Regular Member


Date Joined Jan 2009
Total Posts : 394
   Posted 4/30/2009 11:22 PM (GMT -6)   
She is on Asacol 2400 mg daily and Rowasa enema. She recently started taking Allegra and I am really curious if that is the culprit. However, she does not drink enough fluids, hates bananas and does not take a multivitamin....it is impossible to get her to take more pills than she already has to.

Thanks for the info!!
Gwen
 
10 yr old daughter diagnosed with "UC-like Crohn's" 12/08
2nd opinion March 2009 - diagnosis UC and not Crohn's
 
currently on 2400 mg Asacol & Rowasa 1x day


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/30/2009 11:28 PM (GMT -6)   
Could definitely be growing pains (I remember feeling them in my shins when I was a kid, not really in the knees though), how's her B12 and potassium levels, if either are too low then they can cause similar symptoms to what you're daughter is experiancing.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 5/1/2009 7:03 AM (GMT -6)   
I heard low potassium levels can cause leg cramps. Maybe you can give her Pedialyte (sp?) to help her with her electrolytes (sorry about my spelling, not sure about that one, lol). That's the first thing I buy to drink when I start to flare, because I don't like gatorade.
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg (Aug 2008), increased to 7.5mg/kg (March 2009), increased to 10mg/kg and increased to every 6 weeks (April 2009) - 7 infusions so far, next infusion on 5/28 continuing every 6 weeks; Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate); Prednisone 40 mg daily
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis, Probiotic Align
Diet: Spinach and Sunflower seed butter diet (starting 3/21/09) (will try again once I can eat normally again)
Current Status: April, 2009 - suffering another flare-up :( Surgery may be my next option.


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 5/1/2009 9:38 AM (GMT -6)   
Try Potassium and Magnesium. There are liquid forms if the pills are too tough. Both good for leg cramps and growing pains. My son was tortured by them for 6 months. Heating pads tended to sooth him too.
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/1/2009 9:43 AM (GMT -6)   
Gwen, this site has a list of potassium-rich foods. There may be items on there that she will eat:
 
http://www.essortment.com/all/potassiumfoodh_rkyn.htm
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


at wit's end
Veteran Member


Date Joined Jun 2007
Total Posts : 569
   Posted 5/1/2009 11:57 AM (GMT -6)   
I've been having leg cramps or spasms in the calf area for over a month now on and off, and my potassium is normal. I've had blood work done 3 times over the past 3 or 4 weeks for other issues and every time it is normal. And I take a daily vitamin and eat bananas quite often. So I think it is my asacol as I take 2400mg a day.
Diagnosed with left sided UC in sigmoid colon and rectum 1986.
Put on Azulfidine 2 X 3 a day and Rowasa enemas 60mg.
Have been pretty much in remission overall other than a few flares over the past 21 years.
Medicine changed to Asacol 400mg 2 pills X3 times a day. Taken off all meds in 2004.
Diagnosed with acid reflux 2005. Put on Protonix 40mg.
Have been using Canasa 1000mg suppositories nightly since January 2007.
Was put back on Asacol 400mg 2 pills 2X a day in July 2007 maintenance. 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 5/1/2009 1:00 PM (GMT -6)   
Judilyn said...
Gwen, this site has a list of potassium-rich foods. There may be items on there that she will eat:


http://www.essortment.com/all/potassiumfoodh_rkyn.htm


Very informative link. I hadn't realized spinach was also high in potassium.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 18, 2018 1:59 AM (GMT -6)
There are a total of 2,972,697 posts in 326,011 threads.
View Active Threads


Who's Online
This forum has 160837 registered members. Please welcome our newest member, rohrerdot.
252 Guest(s), 4 Registered Member(s) are currently online.  Details
CaliGirl81, Saipan Paradise, randynoguts, Another UC Mum