I think that the decision of whether or not to have surgery would be more dependent on the symptoms you have and whether or not medications work rather than how much of your colon is affected. My doctor told me that someone who has just a few inches of inflammation can have just as bad of symptoms as I did, and I have pancolitis.
If you have surgery, the entire colon must be removed, even if only the left side is affected. That's because there's a very high chance that the remaining part of the colon could become affected, which would make the surgery worthless.
That was my most important question, if you had to remove the whole colon. Thanks for the answer. I'm asking about
surgery because although I'm getting better (no blood, less frequency, etc.) I still am experiencing a severe loss of motility. If I don't take miralax, I do not have the muscle strength there to push the stool out. I'm hopeful as the medication has more time to work the motility will improve and I can stop the Miralax, but wondering if the loss of motility alone will lead to surgery! I see my GI next week and I'm going to stop Miralax a few days before and see what happens. I tried a few days again and was in severe pain and unable to have a BM despite the feeling of urgency and cramping!
37 year old mom of 2.
Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.
Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22
Current Meds: Apriso 4/day, Prednisone 40mg per day, Rowasa Enemas 2/day, Culturelle
Had FIRST Remicade transfusion in the hospital 4/22/09