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Regular Member

Date Joined Mar 2009
Total Posts : 53
   Posted 5/3/2009 3:27 AM (GMT -6)   
First a bit of a backstory.  At the end of January I started to pass mucus and blood with every bowel movement.  Sometimes I would pass ONLY mucus and blood.  After 2 weeks I made an appointment with a board certified Gastroenterologist.  When I went to see him, and after hearing my symptoms, he ordered a colonoscopy.  Unfortunately, he could only get me in on February 27, and the appointment with him was on February 9th.  I made the mistake of trying to diagnose myself over the internet.  Big mistake.  By the time I was done I was so afraid I had colon cancer I was almost ready to find the cemetery plot for myself, despite the fact that I'm 27 and have no family history of cancer (colon cancer specifically).
February 27th I had my colonoscopy, where I was awake through the entire procedure.  Their sedatives would NOT work on me.  Not a fun experience.  However, after it was done, the doctor came in and gave me my results - Ulcerative Colitis, and a fairly mild case, and borderline moderate.  I got two prescriptions, one for Lialda 1.2GM tablet and Rowasa enema to be taken every night before bed.  The enemas seemed to help within the first 2 days.  After a few weeks, he told me to taper off to see what would happen, and the bleeding started to return so he told me to continue using them.
Long story short, here I am, a little over 2 months on Lialda and Rowasa and I was told to take myself entirely off of Rowasa 2 weeks ago. Since then, I have had no problems.  No bleeding, no increased frequency and no mucus.  The doctor said my UC was confined mostly to the left side of the colon.
So far Lialda seems to be a lifesaver for me.  My only side effect are headaches, though they're very manageable, and common.  I am very pleased thus far.
I have found that alcohol has no affect on my UC, but coffee (due to its feature of being a natural laxative), does increase frequency a bit, but no blood or anything.
I think the hardest part for me with this is my idiotic belief that I am invincible for my age.  Granted this is not a terminal disease; I am still having a hard time of taking pills for this for the rest of my life, and dealing with future flare-ups and potential hospital admissions due to extreme flare-ups.
This forum has given me invaluable information, and it's very nice to see more people with the same problems I had in the past.  I can't talk to my friends about this because they have no idea what UC is.  My doctor says I have had it for a while, and was undoubtedly brought on by my chronic constipation since I was 15 due to hypothyroidism (though I'm not fat or anything).

Regular Member

Date Joined Mar 2009
Total Posts : 50
   Posted 5/3/2009 6:00 AM (GMT -6)   
It takes time to adjust to a diagnosis. I have had a few moments since my UC diagnosis of despair. I consider myself to be young, healthy and strong. How did this happen? Some days I am blue and some days I am rebellious.

It has been a couple of months now and my flare is in remission and I am trying to get off the prednisone and build up my strength so that I can go back to work and get back to my life.

Now, I mostly think about making the best choices for me. I try to avoid thinking about what could happen. I think about what I can do, what I can eat (especially in the evening when I want to eat everything in the house thanks to the prednisone), what I want in my life and how I am going to get it.

It is excellent that you seem to have responded so well to the medications. I hope you experience continued improvement!
Female, 41
1995/09/15 - proctitis (during pregnancy, just months after I quit smoking)
2009/03/03 - ulcerative colitis - Pancolitis

Fighting my first major flare Jan 2009
first UC flare may have been at the end of 2006, 2 months after I quit smoking again

60 mg prednisone Mar 5/09 - taper by 5 mg every 4 days starting April 17/09
salofalk enemas = 5-aminosalicylic acid (mesalamine) added March 24/09
Mezavant 4.8 g daily (mesalazine)

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