Ill during holiday :(

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qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 5/3/2009 9:13 AM (GMT -6)   
I went on holiday to Canada 2 weeks ago and was nearly into remission...no blood or mucous anymore and down to around 2 BM's most days.  Very tired etc all the time as I was still recovering but I was definitely on the mend.
 
However I had dropped down to 5mg of steroids and finally came off them on Sunday 2 weeks ago the day after I arrived. By the Weds I was feeling pretty rough and by the Thurs I was VERY nauseous and up to 8 BM's during the day and through the night also. Some blood appeared and the stool was very black. I went back on the Prednisolone 15mg and things had started to improve by the weekend. However for several nights I had searing pain whenever I lay on my right side, and alot of discomfort when I lay on my left. Now although things have improved after going back on the Pred I still need to go to the bathroom most of the time about an hour or so after I eat a meal, the BM's range between constipation, diarrhoea, formed stools and I've only noticed a small amount of fresh blood twice.
 
Anyone explain what is going on??! I'm worried now because my consultant said when I was in the hospital that he would try me on this last lot of steroids and this new suppository - Acetarsol, but that if this didn't work and things came back once the medication was reduced then surgery may be the option.
 
Also I was off work for 2 months and since then have only been working half days, I'm due back to work from my holiday tomorrow and they are expecting me full time but there is absolutely no way I feel up to that but I feel like I'm going to have to.
 
Argh! confused

22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
15mg Prednisolone tablets (tapering from 40mg, came off at 5mg then back up to 15mg)
1g Acetarsol suppository every other night (Previously taking 5mg Pred suppository)
1g Mesalazine granules x 2
 
7.5mg Zopiclone (taken when needed for sleeping)
10mg Citalopram (anti-anxiety/depression)
Probiotic Multivitamins 
                             
                             


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/3/2009 10:00 AM (GMT -6)   
It sounds as if the Acetarsol and Mesalazine are not getting you into remission, and the steroids are the only thing helping you with your flare. It looks as if you've had limited relief from steroids, and long-term therapy with them is not appropriate anyway.

Has your consultant talked with you about Azathioprine or 6-MP? I believe in the UK sometimes they will give a few infusions of Remicade to induce remission while the immunosuppressants (Aza or 6-MP) are taking effect, but I've been told by some of our other members that long-term Remi therapy is not an option there. Ask your consultant about all the options, then make your decision.

If it does come to surgery, it isn't the end of the world. We have several members living full, active lives after having the j-pouch surgery.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 5/4/2009 11:31 AM (GMT -6)   

No for some reason the consultant never mentioned any of those treatment options in the 3 options he gave me while in hospital. Don't know why?!

Hmmm!


22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
15mg Prednisolone tablets (tapering from 40mg, came off at 5mg then back up to 15mg)
1g Acetarsol suppository every other night (Previously taking 5mg Pred suppository)
1g Mesalazine granules x 2
 
7.5mg Zopiclone (taken when needed for sleeping)
10mg Citalopram (anti-anxiety/depression)
Probiotic Multivitamins 
                             
                             

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