Wow, thanks everyone for sharing your remicade stories. I can say today I actually feel better. I had really bad gas pain etc (you can figure the rest out) lol for the past few days too so I increased my prednisone to 10mg from 7.5mg yesterday. Since then I seem to be somewhat better. I just think that the side effects I experienced were the way my body decided to deal with it. I think the fatigue and headache were the worst but maybe next time I will not get that bad. I guess I was looking forward to relief and not feeling worse afterwards but I have to patient. Not my forte! lol
Keith...let me know how your second infusion goes...mine is next week on Wednesday. I am nervous but am looking forward to no flares someday soon. I considered myself in remission or close to it prior to my first infusion so I guess I was a bit discouraged that I actually felt worse than I had before infusion. Oh well, we are all so different. Keep me posted on your progress, it is nice to have someone that is on a similar infusion schedule as mine!
thanks everyone, take care
32 yr old
Pancolitis since oct 06 told I have crohns-colitis over lap 10/08
waiting on that remission
asacol 12 daily, canasa suppositories, protonix, iron supplement, ativan, Prednisone started at 30mg now on 10mg daily.
Started remicade 4/28/09....no notice of relief yet
Trying to stay positive!!