Flare during 'special' time of month for women???

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christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 5/4/2009 7:50 PM (GMT -6)   
Just curious, does anyone else seem to flare during their menstrual cycle, or is it just me? It seems as though I'm running/bolting to the bathroom more frequently during that time of the month! It's terrible!!! Does anyone know of anything that can help with this? It seems as though my stomach gets so upset during this time no matter what I eat or don't eat for that fact. Any suggestions would be much appreciated! I swear I go from one thing to the next! smilewinkgrin It's awful really. cry   Thank you all.
Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
Urticarial Vasculitis (my newest endeavor)
 
 
Current Meds:
Xyzal (5 mg every 12 hours), Atarax (every 6 hours), Pepcid (every 12 hours), Doxepin (50mg at bed time), Levothyroxine (.50 mg), and Ativan if needed, but I haven't really used it. I also have been loving Aveeno Oatmeal bath, and their calimine lotion when all else fails!
 
 
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 5/4/2009 9:53 PM (GMT -6)   
Oh, yes. I'm not sure what would help. And I need to take Aleve to control cramps, which is not good.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; used prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion). 
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ 


christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 5/4/2009 10:00 PM (GMT -6)   
Yeah, sometimes I have to take midol to help with cramps too, but it doesn't help the uc!
Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
Urticarial Vasculitis (my newest endeavor)
 
 
Current Meds:
Xyzal (5 mg every 12 hours), Atarax (every 6 hours), Pepcid (every 12 hours), Doxepin (50mg at bed time), Levothyroxine (.50 mg), and Ativan if needed, but I haven't really used it. I also have been loving Aveeno Oatmeal bath, and their calimine lotion when all else fails!
 
 
 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 5/4/2009 10:26 PM (GMT -6)   
Oh yes! You'll find plenty of women on here with the same thing. I'm in remission now and I still get increased d before/during my period. The freaking out levels of hormones around your period are to blame. Even women who don't have UC experience d with their periods. I started bc because of it. It seems to have helped some but it still happens. I just deal...I'm not a huge fan of taking pain relievers so I just look as cramps as a justified reason to take a nap tongue
Sam(antha)
20 year old college student diagnosed in March 2005
Remission since January/April 2006->THREE YEARS!!!!!
Trying Colazal 3 750mg x2 (NOT for a full blown flare, just some random symptoms)
25mg Elavil
75mg Effexor XR for GAD
Will possibly go back to asacol
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou


KOB821
New Member


Date Joined May 2009
Total Posts : 7
   Posted 5/5/2009 1:51 AM (GMT -6)   
For me midol help in most cases. If one doesn't work try taking 2. And for me cramps lead to flare, if I can control cramps I am fine. Also try to avoid cold drinks as well. Hope it help.
26 yrs female.
Diagnosed 24yrs old. Jan 07.
Sulfazine EC 500mg 2 tablets/ 4x


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 5/5/2009 3:01 AM (GMT -6)   
My flares aren't affected by my monthly cycle.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/5/2009 10:30 AM (GMT -6)   
I don't have a problem, but I'm on the pill, so I don't know if it would be different if I were off of it. I guess I'll see when I quit the pill again when DH and I decide to have our second chile (assuming my UC is under control!).
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/5/2009 10:54 AM (GMT -6)   
My stomach & bowels are horrible areound my period- I just got my period this past Sunday, & all wknd I was basically on the couch between bathroom trips. The cramping from the period intensifies any bowel cramping, it's just awful. My UC usually acts up the 3-4 days before I get my period, then opnce I get it things settle down. I believe it's the hormonal imbalance, something along those lines. I'm not on the pill. I do take Tylenol if it's very painful, but I find I don't need it too often.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 5/5/2009 4:49 PM (GMT -6)   
Thank you all!! I appreciate your comments! Glad to know I'm not the only one. Thank you.
Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
Urticarial Vasculitis (my newest endeavor)
 
 
Current Meds:
Xyzal (5 mg every 12 hours), Atarax (every 6 hours), Pepcid (every 12 hours), Doxepin (50mg at bed time), Levothyroxine (.50 mg), and Ativan if needed, but I haven't really used it. I also have been loving Aveeno Oatmeal bath, and their calimine lotion when all else fails!
 
 
 
 


singnrun
Regular Member


Date Joined Apr 2009
Total Posts : 31
   Posted 5/5/2009 7:19 PM (GMT -6)   
I do flare during my "special" time. So I have to make sure i take it easy during those times because with the cycle and the flare it means a good amount of blood is lost. :-P
Background info:
9 colazal (mylan) a day (3 in the morning, 3 in the afternoon, and 3 at night)
3 Iron a day (1 in the morning...)
Extra stuff: lots of probiotics (sustenex, culterelle, florastor one of each a day) 2 tumerics a day 1 fish oil a day  1 or more VSL#3 (probiotic) a day 1 scoop of Muscle Armor (has anti inflamatory stuff called juven) 1 or 2 Metamucil (cookie?) a day
For the Beatles fans: Its a "LONG AND WINDING ROAD" but you just gotta "LET IT BE" you may need some "HELP" but it will be worth it in "THE END"!!!!
 SINGNRUN!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/5/2009 7:47 PM (GMT -6)   
My IBD gets worse during my periods (acording to Dr. this is fairly common for us), this is why I posted about anyone using Mirena IUD to stop my periods all together in the hopes that with it stopping my periods my IBD will be better controlled.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


firstgradeteacher
New Member


Date Joined May 2009
Total Posts : 5
   Posted 5/5/2009 8:00 PM (GMT -6)   

Yes!!!  I can tell a difference even when I am not having a flare.  Must be due to hormones.

Age:  34   UC for 17 years

Hospital 2 times

asacol

Azathioprine

Remicade

Effexor


Post Edited (firstgradeteacher) : 5/5/2009 7:03:31 PM (GMT-6)


uclife
Regular Member


Date Joined Aug 2007
Total Posts : 50
   Posted 5/5/2009 10:30 PM (GMT -6)   

I am on the pill continuously for 4 cycles and then off for one week and back on for another 4 cycles.  I find this works awesome!  I had a long discussion with my OB/GYN and she has other patients with IBD and she has them doing the same.  I was really bad around my period too.  I would get really bad D and then exhausted on top of the already tiredness from UC.  I am great now and will continue to take it for as long as my doc lets me.  I also made sure to tell my GI and PCP too, I like to keep them in the loop about my meds and treatments.

Good luck!


Amy
32 yr old
Pancolitis since oct 06  told I have crohns-colitis over lap 10/08
waiting on that remission
asacol 12 daily, canasa suppositories, protonix, iron supplement, ativan, Prednisone started at 30mg now on 10mg daily. 
Started remicade 4/28/09....no notice of relief yet
Trying to stay positive!!
 


yellowlilax
New Member


Date Joined May 2009
Total Posts : 9
   Posted 5/6/2009 4:30 PM (GMT -6)   
Yep! Always had diarrhea right before and during and a little after my cycle. Just adds to the fun, right ;) haha

Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 5/6/2009 4:50 PM (GMT -6)   
Yes, when I was young my flares were always worse during that time of the month.

But here is some good news: for me, the closer I got to menopause, the less intense my flares. Now, post menopausal, my UC is relatively mind....few flares and quite mild but I am still taking Azulfadine and Folic Acid.

A cruel disease....for me it was at it's worse from 15 years old to about 30 years old........the years that should be most carefree but at least now I am much better.
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm

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