Have you ever?

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christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 5/4/2009 9:56 PM (GMT -6)   
So I was sitting at dinner thinking of things that my UC has been an inconvience to (as life in general isn't enough), and this is what I've come up with so far and I'd love to hear some of your stories..but have you ever been at work and wished you could move your desk into the restroom with you?? Or have you ever been eating dinner and had to finish your meal on the pot?? Love that one!!! What else....
Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
Urticarial Vasculitis (my newest endeavor)
 
 
Current Meds:
Xyzal (5 mg every 12 hours), Atarax (every 6 hours), Pepcid (every 12 hours), Doxepin (50mg at bed time), Levothyroxine (.50 mg), and Ativan if needed, but I haven't really used it. I also have been loving Aveeno Oatmeal bath, and their calimine lotion when all else fails!
 
 
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/4/2009 11:43 PM (GMT -6)   
Eating on the toilet, that seems counter productive. I have joked many times that they should just put a desk in front of the toilet at my work. The best is trying to figure out how long it takes to get from point A to point B, checking google maps, and then wishing it had an IBD feature to allow time for multiple potty breaks.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/5/2009 12:39 AM (GMT -6)   
I still sometimes have to stop while eating to use the can (I really hate that), nothing like sitting on the toilet chewing away on your supper) I'm amazed that it doesn't ruin my appetite, but I guess considering I don't really eat a ton of food on a daily basis I'm thinking that could be why it doesn't ruin my appetite, that or the fact that after 18 yrs I've just adjusted...how sad.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 5/5/2009 12:57 AM (GMT -6)   
christianbcmom said...
So I was sitting at dinner thinking of things that my UC has been an inconvience to (as life in general isn't enough), and this is what I've come up with so far and I'd love to hear some of your stories..but have you ever been at work and wished you could move your desk into the restroom with you?? Or have you ever been eating dinner and had to finish your meal on the pot?? Love that one!!! What else....

 
Hey Alaina
 
I do appreciate your concern. I am also of the opinion that we should have something of this kind. Infact, I am sending you a quite hillarious module of the rest room desired by you. The same has been sent by email to your email id. Quite hillarious. I am sure you would like it.
Cheers.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 5/5/2009 11:50 AM (GMT -6)   
Maybe one of the following is what you were thinking of:

Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 5/5/2009 4:45 PM (GMT -6)   
Those pictures flippin' crack me up!!! That's exactly what I'm talking about Paul!!! Too funny! Thank you all, somedays it's just hard to manage, but laughter is terrific medicine!! Thank you!!
Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
Urticarial Vasculitis (my newest endeavor)
 
 
Current Meds:
Xyzal (5 mg every 12 hours), Atarax (every 6 hours), Pepcid (every 12 hours), Doxepin (50mg at bed time), Levothyroxine (.50 mg), and Ativan if needed, but I haven't really used it. I also have been loving Aveeno Oatmeal bath, and their calimine lotion when all else fails!
 
 
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 5/5/2009 9:48 PM (GMT -6)   
I've been disappointed so many times when I've had to take a potty break in the middle of a great restaurant meal, to return and find they took it away while I was gone!

Business dinners or banquets, didn't dare make a fuss, just sucked up my disappointment.

With family and friends I've learned to say, don't let them take away my food!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; used prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion). 
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ 


taterbug
New Member


Date Joined May 2009
Total Posts : 6
   Posted 5/6/2009 12:55 AM (GMT -6)   
I have had to take my poor babies in the restroom with me to nurse. I am so glad they don't realize what's going on.

I also have to leave my hubby in the middle of conversations, telling him to hold that thought...

I often take the phone in the bathroom to make my calls while I sit. Of course, I cover the phone if it gets noisy. I will NOT let this illness steal my time. I hate how it did for a while, but now I have learned to take something in the restroom with me to do so I can still be productive.

I used to wonder how people could sit in the bathroom and read for minutes on end. I used to go in, do my business, and be done in about 2-3 minutes. Now, with UC, I have plenty of reading material on the tank of the toilet. I will be a genius at the rate I am in there now. I was just reading something about how the brain works tonight!

Taterbug

taterbug
New Member


Date Joined May 2009
Total Posts : 6
   Posted 5/6/2009 12:59 AM (GMT -6)   

One other area of UC inconvenience would definitely be in limiting spontaneous intimacy. I have to be strategic about what time I use my nighttime enema. "Not tonight, Honey. I just inserted my meds." shakehead

Taterbug


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/6/2009 1:25 PM (GMT -6)   
LOL, I always get a cramp right in the middle of my wife telling me something. Maybe it's intentional!

Feeding the baby in the morning sometimes takes place on the can. I have eaten breakfast there before. I have been in the middle of doing a patient exam many times and had to excuse myself. Worse is trying to develop an xray and just sticking the film in the processor and getting that sudden cramp. Have to wait at least 30 seconds for it to get in, but that's a lifetime. I have since allowed myself the option of using the trash can there, so that takes the anxiety away. Had to excuse myself right in the middle of you know what on my honeymoon night, lol. Talk about a mood breaker.
Proctitis DX 1999, Pancolitis DX 2008
Immuran
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3+Ca/1000mg DHA

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