Sick and Tired of being Sick and Tired

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Regular Member

Date Joined Jul 2006
Total Posts : 330
   Posted 5/5/2009 6:04 AM (GMT -6)   
I have also been flaring since Dec..finally had another colonscopy a few weeks ago and they still dont know what they will do next ...I feel nauseas during the day and night have stomach cramps too and urgency to run to the toilet is getting tiring...I understand completely...sick and tired of being sick and tired

Post Edited By Moderator (Lonielane) : 5/5/2009 7:23:43 AM (GMT-6)

Regular Member

Date Joined Jan 2009
Total Posts : 498
   Posted 5/5/2009 7:09 AM (GMT -6)   
Hey Cfg

Sorry to hear about your continuing flare up. Have you tried Psyllium Husk/powder. It may help in regulating the D. What kind of cramps do you have? Are they on the left side? If nothing works, try hot water bottle or heating pad. It may help to give some relief from pain.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."

Regular Member

Date Joined Sep 2008
Total Posts : 153
   Posted 5/5/2009 7:44 AM (GMT -6)   
Hi cfg. Just wanted to say that I completely understand about being sick and tired of being sick and tired. I'm right there with ya on that these days. Hopefully your dr willl come up with a plan of action that will get you feeling better soon.
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg (Aug 2008), increased to 7.5mg/kg (March 2009), increased to 10mg/kg and increased to every 6 weeks (April 2009) - 7 infusions so far, next infusion on 5/28 continuing every 6 weeks; Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate); Prednisone 40 mg daily
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis, Probiotic Align
Diet: Spinach and Sunflower seed butter diet (starting 3/21/09) (will try again once I can eat normally again)
Current Status: April, 2009 - suffering another flare-up :( Surgery may be my next option.

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