Pred. tapered to 30mg & flare came back : (

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Cadillac Lover
Regular Member

Date Joined Feb 2009
Total Posts : 235
   Posted 5/5/2009 2:15 PM (GMT -6)   
I was fine at 60-50-40mg and after about a week of being at 30mg i started having a flare. I went back up to 40 mg and it's a little better but i'm still going to the bathroom 5-8 times a day but no blood or cramping. I haven't spoke to my gi yet. Anyone else flare while tapering? I'm on asacol too. My gi prescribed the mp6 a couple months back when I was having a real bad flare but I never took any of it since the prednisone was working fine. How long can a person stay on prednisone without tapering? I don't really have any side effects from it except for occasional depression and anger but it's worth not having a flare.
Diagnosed with UC summer of 08.
Currently taking asacol 1600mg 3 x a day, Prednisone 60mg, 6MP 50mg.
Currently having a flare.

Regular Member

Date Joined Sep 2007
Total Posts : 365
   Posted 5/5/2009 2:43 PM (GMT -6)   
Yes. I dropped slowly to 10mg from 40mg and my flare came back hard! I am looking to get on 6MP or Immuran next. If it were up to me I would keep my pred dose high but my GI is concerned about the side effects... I honestly would rather deal with the side effects then head toward surgery.... I have heard people being on large doses of pred for many months... I had been on since Jan, then tapered, and flare was back right away... 6MP is next - but it can take 3 months or more to kick in.

I recently was put back on 20mg by my changes in I bumped it up myself to 30mg today...I feel a bit better...

This really sucks!
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Started left-sided, most recent scope shows pancolitis
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Multivitamin.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"

Cadillac Lover
Regular Member

Date Joined Feb 2009
Total Posts : 235
   Posted 5/5/2009 2:48 PM (GMT -6)   
you can take the 6mp while on pred right? on the bottle it says "do not drink alchohol while taking". i like to drink occasionally, i wonder how bad it is to drink when taking it?
Diagnosed with UC summer of 08.
Currently taking asacol 1600mg 3 x a day, Prednisone 60mg, 6MP 50mg.
Currently having a flare.

Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 5/5/2009 2:53 PM (GMT -6)   
It's VERY common to take pred while starting on 6mp, because 6mp can take a while to kick in, and the pred keeps the symptoms under control in the mean time.

You should both be aware that there are some SERIOUS long-term side effects, such as osteoporosis, that can result from prednisone use, and that aren't as noteciable as other side effects like insomnia and moonface. I'd much rather have surgery than use prednisone extensively.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).

Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 5/5/2009 10:05 PM (GMT -6)   
There can be serious long term effects from prednisone use, but I for one never got any of them.
But I'm all for trying the new treatments, I'm doing well on Remicade. I say get going on the 6mp!

Hey Caddylover, did you ever see my post to you about my Cadillac XLR??
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; used prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion). 
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ 

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 5/6/2009 9:30 AM (GMT -6)   
     Cadillac...I think they say do not drink alcohol is that it can affect the liver.  You don't want to wind up with cirrhosis.  I drink an occassional glass of wine though.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/ see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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