Sorry you are going through this! I am 36 and was dx'd with uc in 2002, pancolitis. I was on asacol, imuran, remicade, prednisone and a number of pain meds. Surgery was always on the horizon for me but one I fought until March. I had a routine colonoscopy and they found low grade dysplasia (pre-cancer cells). I met with the surgeon on April 10th and had surgery on April 13th. I am currently 3 weeks post surgery and feel pretty good. I have the temporary loop and bag and don't care for it much, I am not used to it and don't want to be, BUT it is only temporary and I have to admit that I don't miss running to the bathroom 15+ times per day, the blood, the pain, fatigue, etc. I don't have any of it anymore and it is nice. Plus, I no longer have to worry about colon cancer. I can't wait for my second surgery which will happen in the next 6 weeks or so.
That being said, I would seek another opinion before agreeing to surgery. My surgeon told me he has turned people away who have not tried all meds available and it doesn't sound like you have. You do need to be careful of becoming steroid dependent as steroids can wreck havoc on your body too. I developed osteopenia from prednisone.
Anyway - good luck!
UC diagnosed in 2002
Currently taking 400mg Asacol, 9 per day; 100mg of Imuran per day; Remicade every 7 weeks
Mommy of twins
Previously a Promotions Marketing Manager
Husband in law school.