worst pain ever *updated in 1st post*

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Regular Member

Date Joined Nov 2008
Total Posts : 28
   Posted 5/6/2009 5:43 PM (GMT -6)   
i have never been in this bad of pain and it has been here since sunday.  I have a terable sharp pain at the top of my belly.  Like right below my brestbone.  I sit bent over in pain hurts worse when i stand.  my pills my gi gave me arnt helping and i had to take a hydrocodine to help me.  Hes not back till thursday and i can't even get in to see him till my appt later this month. 
This is my 3rd week on 6mp.  Heat helps.  But when i eat a meal, or wake up it is way bad.  I have no idea what it could be does anyone know
* update***     So we figured out it was the 6mp.  I Started having the pains on Sunday.  had all week.  Friday went for a bunch of test.  Felt really bad when i went to bed so i didn't take my meds.  Woke up Saturday feeling much better.  Was stupid and took my meds agian Saturday and and suffered all day Sunday.  haven't taken them since.  Went and talked with the nurse and the GI on Monday and told her everything (gi has been outta town) and she called doc and told him for like the 4th or 5th time this week and he said if pain was my main complaint and they hadden't seen anything on the other test it could be the 6mp.  He said it can upset your pancrease.  I haven't taken it since and i feel great now.  So that is what i am blame this on.  I would rather be in a flare than have that pain agian.

Post Edited (peverroad) : 5/12/2009 3:51:19 PM (GMT-6)

New Member

Date Joined Mar 2009
Total Posts : 16
   Posted 5/6/2009 6:53 PM (GMT -6)   
sounds like what i got from the steroids, my gi said it is acid reflux caused by the steroid so maybe the 6mp did it to you which im also on...gi prescribed nexium and it seemed to help

Veteran Member

Date Joined Mar 2008
Total Posts : 678
   Posted 5/6/2009 7:04 PM (GMT -6)   
Could it be pancreatitis?
31 yr old female currently breastfeeding (weaning so I can start 6mp)
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon

Regular Member

Date Joined Nov 2008
Total Posts : 28
   Posted 5/8/2009 4:28 PM (GMT -6)   
ugh. I have had 2 days of testing from my regular doc cause i can't get in to see my gi. We really thought it was my gallbladder. did an ultrasound and everything looks alright. Well i went for a ct of my belly and pelvis and my doc is like well it looks like colitis. I am like duh i told you that i think this is something different, she says i can give you antibodics. I said thanks but no thanks and left. I call my GI and tell them what the ct says. and they call back and said they will give me a script for entrocort. Fine i said but what about the pain. This pain is worse than childbirth. I havn't felt alright for 5 days now. Terable belly pain up high looked just like gallbladder. They say well he really doesn't give pain meds. The regular doctor wouldn't give them to me. I think i will just have to go to the er next time i get a relly bad spuot of pain. It lasted 6 hours last night i couldn't do anything to control it.

Veteran Member

Date Joined Feb 2009
Total Posts : 735
   Posted 5/8/2009 4:46 PM (GMT -6)   
It really does sound like a drug side effect.

Regular Member

Date Joined Apr 2009
Total Posts : 208
   Posted 5/8/2009 4:51 PM (GMT -6)   
I had pain like this and it was just my severe UC. I went to the ER and was hospitalized. If it persists you should go to the ER.
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Apriso 4/day, Prednisone 20mg per day, Rowasa Enemas 2/day, Culturelle

Had FIRST Remicade infusion in the hospital 4/22/09, 2nd infusion 5/7/09 (I think the first infusion put me in remission!)

Regular Member

Date Joined Nov 2008
Total Posts : 28
   Posted 5/12/2009 4:52 PM (GMT -6)   
bump for my update.  I feel so much better. update in 1st post

Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 5/12/2009 4:57 PM (GMT -6)   
Well, I'm glad you're feeling better.

So are you on anything else to control your UC? After going through all that pain, I'd hate to see you go into a flare!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).

Regular Member

Date Joined Nov 2008
Total Posts : 28
   Posted 5/12/2009 8:05 PM (GMT -6)   
i need to figure out how to put it in my siggy but i am taking 6 asacol 3x2 day. and proboitics.

Elite Member

Date Joined May 2003
Total Posts : 30984
   Posted 5/12/2009 8:16 PM (GMT -6)   
Hi..great you're feeling better!

To change or add to your profile....click on "Control Panel"....then "Edit Profile"...scroll to the bottom, and create or change your signature, click "Save".

I would suggest you log out, then exit windows or go to another site, then back here, log in and your profile should be changed and your signature showing. At least that's what I've found what works.

Your signature will only be show/change as of the new postings after it's changed in your profile.
Remember that a profile can only be 10 lines....spaces between lines are counted as one. 


*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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