Newbie - flare doesn't subside

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UniG
Regular Member


Date Joined May 2009
Total Posts : 110
   Posted 5/6/2009 8:16 PM (GMT -6)   
Hi, I'm new to this forum and this is my first posting. I've been reading threads for awhile now and have found other's postings helpful and reassuring.

Despite taking oral Salofalk, 3 pills a day and enemas every other night, I still see blood on stool and in the water. I'm concerned that I don't seem to get into full, 100% remission. Is it "normal" to always see blood or should I insist on new drugs from my GI.

I don't suffer from diarreha but instead suffer from constipation, bloating and gassssss!

I'm determined to get better.

Thanks for any input - all the best,
Universe - girl
Diagnosed Jan 2008 ulcerative proctitis
Last sigmoidoscopy Jan 2009, 17" inflammation of lower colon.
Always blood in bm, despite anti-inflammatory diet and
enema and oral Salofalk. Concerned that the bleeding, although fairly light, never really stops. Constipation and gas is my symptom of a flare - not diarrhea.
Working with naturopath; taking high quality probiotics daily, ground flax, Salmon oil, Glutagenics, Aloe Vera juice and a Vegan diet and mega vitamin supplements.

My brother had UC and ended up with an illiostomy after years of struggle.

Have tried Bastyr's formula and peppermint oil formula -no luck.


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 5/6/2009 8:20 PM (GMT -6)   
Hi, welcome! Blood is not normal. I would talk to your GI about trying a new med.

Don't be a stranger! Let us know what your GI says.
31 yr old female currently breastfeeding (weaning so I can start 6mp)
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 5/6/2009 9:16 PM (GMT -6)   
or increase the enemas to nightly.

welcome to the forum!

Seems the enemas are working since your inflammation is considered proctositmoiditis and you're having constipation which would probably mean severe inflammation much lower.....

I would suggest continuing on the enemas nightly for at least a month or more...then see how you do.

Been there and had to do that a few times.

You have not even exhausted the Salofalk any where yet.

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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