my son was on REmicade for about three or 4 months until it stopped working but the whole time, he had terrible headaches and constant back pain. even though the symptoms of the UC subsided for a while, the side effects made him feel pretty lousy all the time. Right now I am at Mt Sinai Hospital and he is undergoing surgery to remove this awful disease from his body. We've exhausted all other options and I'm hoping that tomorrow will begin a new life for him, His quality of life with UC combined with all the toxic meds made the final decision pretty easy for him.
better check with your doc if Aleve is ok for UC patients - we were told to stay far away from it because it can cause bleeding. I might be wrong, but best to be sure. Good luck
I wish your son the best of luck! UC patients are always dreading the thought that surgery might be necessary, but at least it IS a cure! I wish your son a fast recovery and a successful surgery.
Thanks for the tip on Alieve, I did not know about
it poss. causing bleeding!
Although I'm not happy to hear Remicade did not work for him or that he suffered these side effects, at least I know I'm not the only one! At least I have another month until I need another infusion so hopefully I will be feeling well the rest of the month!
37 year old mom of 2.
Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.
Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22
Current Meds: Apriso 4/day, Prednisone 20mg per day, Rowasa Enemas 2/day, Culturelle
Had FIRST Remicade infusion in the hospital 4/22/09, 2nd infusion 5/7/09 (I think the first infusion put me in remission!)