what is next for me...?? :-(

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 5/7/2009 3:09 PM (GMT -6)   
Canasa 1000 nightly gave me relief for first 2 months but stopped working after that (maybe because of my rubella vaccination) infact mucus/pus/blood has increased so much that it looks like D whenever i use the rest room while i have constipation in morning. I tried to double canasa past few days but it didnt help a bit. meeting GI mid of this month...
my question is - Is steroid the next step after canasa or are there other medicines also. I want to try everything else before i am put on steroid. Please help, i need some knowledge about medicines before i meet my GI ...thanks!
Right now -FLARING (after my Rubella vaccination)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly...doubled during flare
Symptoms: Mucus, blood, constipated (not always), Lots Gas & No D!
Also gifted with Hypothyroid & have calicum deficiency family history!
Meeting with Doc next month - not yet on oral medication - Doc wants to try just Canasa first!
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09

Post Edited (saposs) : 5/7/2009 3:12:39 PM (GMT-6)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/7/2009 3:17 PM (GMT -6)   
I would go to the website below (Crohn's and Colitis Foundation of America) and read about all of the medication options to treat UC. Specifically, read about the Aminosalicylates, as they are the most "mild" class of meds used to treat UC.
http://www.ccfa.org/info/treatment/medications

If your inflammation is much beyond the rectum at all, the suppositories won't do anything to heal it, as they just don't go up that high. Enemas will reach higher, but are still limited. I would definitely request to try enemas and oral 5ASAs before going on prednisone.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 5/7/2009 3:59 PM (GMT -6)   
thanks fruitgirl... the site is helpful.
Right now -FLARING (after my Rubella vaccination)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly...doubled during flare
Symptoms: Mucus, blood, constipated (not always), Lots Gas & No D!
Also gifted with Hypothyroid & have calicum deficiency family history!
Meeting with Doc next month - not yet on oral medication - Doc wants to try just Canasa first!
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 5/8/2009 12:00 PM (GMT -6)   
just bumping the thread :-) ........ for more info! so that i am fully prepared before i meet the GI
Right now -FLARING (after my Rubella vaccination)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly...doubled during flare
Symptoms: Mucus, blood, constipated (not always), Lots Gas & No D!
Also gifted with Hypothyroid & have calicum deficiency family history!
Meeting with Doc next month - not yet on oral medication - Doc wants to try just Canasa first!
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 5/8/2009 1:56 PM (GMT -6)   
Before starting pred try cortifoam
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3-4X per week
Curcummin and Probiotics/Rueteri.
Bowel Soother and IntestiNew, Fish Oil, Calcium/Mag/Zinc, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Could never tolerate artificial sweetners
I try to excersice/swim daily
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, April 19, 2018 7:45 AM (GMT -6)
There are a total of 2,953,077 posts in 323,966 threads.
View Active Threads


Who's Online
This forum has 162050 registered members. Please welcome our newest member, Trish_2018.
396 Guest(s), 11 Registered Member(s) are currently online.  Details
Lendi, DougW, tickbite666, lazyminimoo, Almost a 10, Acheybody, Progressing, Herophilus, NKinney, garyi, OriolCarol