Frustrated-Finally off prednisone

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Regular Member

Date Joined Jan 2009
Total Posts : 37
   Posted 5/7/2009 4:18 PM (GMT -6)   
I never really post here but do enjoy reading everyone elses posts. I finally tapered down prednisone after being on it since January. I was feeling great while on the prednisone and thought there was no way I could feel bad again. Well I stopped taking it on Monday and today is Thursday and I have gone to the bathroom numerous times and been lying down all day and sticking my kids in front of the tv. I am so pissed! I also take VSL 3, Lialda ( 2 a day), Lexapro 10 mgs. I just needed to vent. I read the boards and think to myself I am glad that I am not as sick as so and so.... This was my first time taking prednisone and I love it and hate it.

Rio in Maryland
Veteran Member

Date Joined Nov 2007
Total Posts : 891
   Posted 5/7/2009 4:41 PM (GMT -6)   
Since you have just tapered off it, do you think it might be worth speaking with your doctor about getting back on at a low dose and then taper off it at a slower rate?

Or you could even try to take cortenema (or other rectal meds) to see if that helps.

It's better to tackle things now so as to get the UC back under control soon.

Hope you're fine soon.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Asacol enema occasionally
Spinach & sunflower seed diet / Juicing spinach and carrots

Regular Member

Date Joined Feb 2009
Total Posts : 402
   Posted 5/7/2009 4:51 PM (GMT -6)   
Argh I completely know your frustration! I finished taking my Pred (5mg) on the 2nd day of my holiday 2 weeks ago and by the 5/6th day I was rushing to the toilet several times and just generally feeling gross. I went back on 15mg to keep me going until I see the consultant on Monday which has helped. I don't have any tips for you but just wanted to say I know what you mean!
22 year old female, from the UK.
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
Currently taking daily: 
15mg Prednisolone tablets (tapering from 40mg, came off at 5mg then back up to 15mg)
1g Acetarsol suppository every other night (Previously taking 5mg Pred suppository)
1g Mesalazine granules x 2
7.5mg Zopiclone (taken when needed for sleeping)
10mg Citalopram (anti-anxiety/depression)
Probiotic Multivitamins 

New Member

Date Joined Feb 2009
Total Posts : 19
   Posted 5/7/2009 6:42 PM (GMT -6)   
I can understand ,  two months ago I tried to taper off prednisone and as soon as I would get below 15 mg I was hit with bowel issues and severe arthitis issues. 
I am now taking 2 Caltrate (calcium and Magnesium ) a day for bone denisty,  it seem to have help my bowel symptoms somewhat .  I began tappering again a week ago and it seem much better,  but I am only going down by 2.5 mg/week .
Best of luck
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