GI visit now confused

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lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 5/7/2009 4:59 PM (GMT -6)   
After spending over 2hrs being proded poked (flex sig done) and bloods taken for everything my GI is unsure if its U/C or chrons he is also cross as he does not have my notes from last hospital that have my colonoscopy results and is trying to chase them he is also testing me for coeliacs.He said colon looks better than 6 weeks ago but said he hopes that the steroids are not just marsking symptoms and if so mean asacol not working and need to try something else and wants to see me in 6 weeks as would have been off pred by then i am feeling in limbo and now have to just carry on as i am untill i see him i know he is doing all to help me but the waiting is going to be a killer.
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started pentasa supps 1gm 26/6/08
 Asacol 800mg x2 twice daily
  Domperidone 10mg as needed
  co codamol 30/500 x2 when needed
  Asacol foam 2g nightly 19/3/09
  Prednisone 60mg 19/3/09 tappering after2wks


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 5/7/2009 8:36 PM (GMT -6)   
Waiting is hard! Sometimes is it difficult for the doctors to tell the difference between UC and Crohn's. Celiac disease can also cause similar symptoms - cramping and D. However, celiac affects the small intestine, UC affects the large intestine (colon), and Crohn's can affect anywhere between the mouth and the anus.

Hang in there :)
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  remission
Lialda 4 per day,  Azathioprine 50mg, Aciphex, Effexor XR, Forvia, Fibercon, and Culturelle
Remicade: 1st infusion 06/17/08:  Next infusion: June 17
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 5/7/2009 8:49 PM (GMT -6)   
Hopefully you will start to get better and can forget about what he will have to say. Think positive!
Your exact diagnosis might not really affect your treatment anyway.
Have you stopped eating wheat/gluten? Try it if you haven't, don't wait. It made a big difference for me, although I have UC too.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; used prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion). 
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ 

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