I don't get it...and canasa long-term isn't a problem at all. Does she mean not to tapered to be used as maintenance? Not clear on what she says NO about
Don't rocking the boat....well, here's one thing that you can be sure of...one may not recognise symptoms until they're obvious. Obvious...that's subjective, because one may not deem some symptoms to be symptoms of inflammation or a flare.
You should be on the Canasa to treat the inflammation you have now or at least on every second or third night as a maintenance until your symptoms warrant to be treated as a flare. Then one or two daily to get inflammation down and then once "normal"...taper to every second night for a while then every third night....I would think twice a week for the suppositories would be a good maintenance dosage.
I prefer using the enemas, but my inflammation is higher. As well, there's a higher dosage of 5ASA in the enemas...and I don't like suppositories. So, that's personal.
But, since the supps are such a LOW dosage, you should use it to the fullest advantage. The plan should be for you to keep inflammation down for the longest period possible. Some doctors may not think that patients can do so....but my 20 years experience of using oral 5ASA and rectal 5ASA state that it can be done...and my flares the first 2 years were truly the worst until I figured out how to use the enemas as treatment and taper them to maintenance.
You should ask her if your UC did get worse.....what would be the next step. REALLY...ask her that. Because if she says pred or immuno meds...you should get real smart real fast about
how to use the 5ASA in your favour for a long time so that you can control the inflammation to "help" prevent the inflammation from spreading upward or the inflammation from getting to the point where meds don't work any longer.
Yeah, I know I'm ragging on about
that....but it could totally be worth it in your future.
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!