answer to lovemyboys question

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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 5/8/2009 9:52 AM (GMT -6)   
     Thought I would start a new post to answer your question about Colazal.  My GI doctor explained that the Colazal is  better for ulcerative proctitis than the Asacol as it treats the lower portion of the colon.  I cannot remember exactly how it works.  Honestly, the only med that does help me achieve remission is the prednisone.  Unfortunately, for me and you...it does raise the blood pressure.  One of the reasons I had to be hospitalized last year was the fact that my blood pressure went up to 210/110 even on my blood pressure meds while on 30 mgm of prednisone.  They had a heck of a time trying to get it to come down.  I was on heavy doses of 3 different blood pressure meds.  Very, very scary.  However, after I was discharged I called my cardiologist (I am not a heart patient but used to have palpitations until I went on Toprol xl).  He suggested taking a water pill.  Well, duh, none of the doctors could figure that out while I was in the hospital?  The cardiologist explained that the prednisone was making me retain fluids and therefore all those blood pressure meds couldn't do the trick.  Perhaps you should mention this to your doctor.  After starting the water pill, I was able to cut back on the blood pressure meds.
     The Colazal does not keep me in remission.  I have suffered yearly flares for the past five years.  I also am on 6MP.  I have had UC for over ten years.  I went to a GI surgeon last year after my hospitalization for another opinion.  I am not a candidate for surgery yet and he thinks I will be just fine.  He also said that the 6MP and Colazal are HELPING me.  The fact that my colitis has NOT spread to the other portions of my colon is a good sign that the meds are doing their job.  So there you have it.  Hope this was of some help.  OH..another important suggestion.  Cort enemas help me a LOT while flaring. 
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


lovemyboys09
Regular Member


Date Joined Apr 2009
Total Posts : 249
   Posted 5/8/2009 2:03 PM (GMT -6)   
I go to the GI at the end of the month and maybe I will ask about colazal. Like I said before...I dont' believe asacol is doing anything for me even though im tkaing 12 pills a day. I am also on azathioprine and won't know for a while if that is working for me or not. I had a colonoscopy on 4/23 and it showed severe ulcerative proctitus ...but what gets me is when I had one 1 1/2 years ago it didn't show inflammation in the rectum but did in other parts of the colon and this time it was just severe in teh rectum. Don't know what thats all about I guess....
Diagnosed with Crohns in October 07
Diagnosed by new dr with Ulcerative Colitis 03/09
Colonoscopy on 4/23-diagnosed with severe ulcerative proctitus
 
Meds:
12 Asacol/day
proctofoam at night
prednisone (10 mg)
Azathioprine (50 mg)
pentasa
canasa
 
Waiting to feel healthy again....
 
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 5/8/2009 3:22 PM (GMT -6)   
     Oh, I feel very bad for you.  Mine showed mild/moderate ulcerations and I felt terrible.  The pain radiated into my vagina and down the insides of both my legs.  I was surprised to find out it was only classified as mild/mod.  I just cannot imagine the pain you are going through.  I really hope you find something that gives you relief.  My doctor prescribied hydrocodone for the pain.  At least I think that was the name of the medicine.  I tried taking it as little as possible so I wouldn't get addicted to it.  It took seven months but I did manage to get out of the flare.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


lovemyboys09
Regular Member


Date Joined Apr 2009
Total Posts : 249
   Posted 5/8/2009 3:59 PM (GMT -6)   
I have had bleeding and urgency for 1 1/2 years now. I am hoping to be in remission when the immuran kicks in sometime....I was doing good symptom wise when I aws on the 20 mg of prednisone...but the side effects were awful for me. since I dropped to 10 mg I don't think its really doing much good at all. I also use proctofoam at night but that doesn't seem to be working well either. My GI would give me pain meds but I decline because I have 2 little boys at home that are 5 and 8 months and can't take care of them while I knock myself out with meds. I think I take close to 20 pills a day between everything...don't need anymore!!
Diagnosed with Crohns in October 07
Diagnosed by new dr with Ulcerative Colitis 03/09
Colonoscopy on 4/23-diagnosed with severe ulcerative proctitus
 
Meds:
12 Asacol/day
proctofoam at night
prednisone (10 mg)
Azathioprine (50 mg)
pentasa
canasa
 
Waiting to feel healthy again....
 
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 5/8/2009 6:00 PM (GMT -6)   
     Try the Cort enemas...they seemed to help a lot too
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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