First off, let me say thank God there is a board like this with other people who understand.
I wasn't quite sure where to post this, but since I KNOW I had UC (diagnosed back in 2001, but in remission for a long time) I figured I would post it here.
Lately I haven't been feeling well and I'm trying to figure out what it is. I am going to a Rheumatologist next month. It's not the UC. I guess I should start out with some family history. The ailments are primarily on my mothers side. My great grandmother died of colon cancer but she lived a long life, I mean, she kind of died from old age as well. Her daughter, my grandmother, had diabetes and also went partially deaf around 30. She was later diagnosed with diverticulitis. I have excellent hearing but I have had some "falling episodes," which I do not know whether I should contribute to an inner ear problem or a fatigue issue, or heck, something else. But those were a while back for me, and not a recent problem.
My mother, after the birth of my brother in 1990, was diagnosed with mononeucleosis (sp?) or epstein barr virus or chronic fatigue syndrome (I'm not quite sure how they all go together but they do somehow). She couldn't breast feed and felt like crap and laid around for months. I felt really bad for her. My brother hasn't had any major health problems, other than a hernia he had surgically removed when he was like 5. I have a first cousin on mothers side that has Stills disease which is like Adult-Onset Juvenile Rheumatoid Arthritis or something crazy like that. Was not diagnosed until he around 40 years old! Also, mom went to a Rheumy last year afraid that she has Fibromyalgia or Rheumatoid Arthritis but her test showed up negative. I'm thinking its the EBV/CFS thingy though showing back up. She is still able to work but I know it is very taxing on her.
I was diagnosed with UC in 2001 after two years of being VERY VERY sick and my local doctors were total idiots that kept misdiagnosing me and wouldn't refer me to a specialist. I also believe that I have had iritis (started in 2005) that was triggered after changing to a certain color contact but at the time I couldn't afford the eye doctor so I'd just smoke **** and take out my contacts and it would get better but I had EXTREME photosensitivity. I just wear clear contacts now. I went to the eye Dr and had him test for iritis but he told me I didn't have it but it either didn't show up because I was normal at the time or he possibly didn't know what he was doing. I know that some eye doctors are not well versed in certain things, it depends on the type of eye Dr.
My UC and iritis issues are in remission and have been for a while. There is one other thing that bothers me. I have an issue with my lower back. It hurts a lot and if I go to cough, sneeze, gag, etc, I feel what is either a disc shifting or a vertebrae shifting. It just moves for a split second and moves right back. I also think I have a slight case of scoliosis, but the back issue I suspect is Ankylosing Spondylitis. I guess I need advice on what you all think about this. Is it possible that HLA-B27 runs in my family? Can CFS be genetic? Could it be Rheumatoid Arthritis or Ankylosing Spondylitis? For a while I was scared I had MS but I have partially ruled it out because I don't have heat sensitivity, but rather cold sensitivity, it can never be warm enough for me, lol. I even go to a tanning bed sometimes.
I don't know if this helps any, but I am a B- blood type (I ended up with fathers blood type, but these illnesses are predominant of my moms side), low blood pressure, rapid pulse (could be because I smoke cigs, shame on me), very slender. Oh, btw, is it a bad idea for me to eat wheat/grainy bread? If I have to give that up I'll be sad. I don't know if I'm allergic to it or not, lol. Also, I am of Irish/Native American/Welsh descent.
THANKS A MILLION TRILLION THANKS for any replies.
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Post Edited By Moderator (Red_34) : 5/11/2009 12:20:53 PM (GMT-6)