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tap
Regular Member


Date Joined May 2008
Total Posts : 474
   Posted 5/12/2009 6:23 AM (GMT -6)   
Yesterday I was reprimanded by a couple of doctors for failing to notify my GI that I was flaring. For some reason I treat this disease as if it's a cold, unless I start experiencing significant discomfort or the toilet runs are having a significant impact on my quality of life I just live with it until I make it back to remission. Am I the only one that behaves this way?

I was diagnosed and treated for a perianal abscess yesterday which I thought was just a hemorrhoid that had thrombosed. It hurt a lot and the treatment wasn't pain free either to say the least.
43 - male
Flaxseed (2 tablespoons ground) - once per day; Vitamin D3 - 5000 IU once per day;
Asacol - 2 400mg pills 3 times per day
Diagnosed with pancolitis about a decade ago


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/12/2009 6:38 AM (GMT -6)   
I have a tendancy of doing that also. I will wait and see if it gets worse before I contact my doctor. My doctors never reprimanded me but my GI has "gently" "slapped" my hands before for not contacting him sooner over a severe flare.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
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notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16282
   Posted 5/12/2009 7:40 AM (GMT -6)   
I've only had one flare and it progressively got worse so I had to see a doctor a variety of times. If it was minor and I thought there was a chance that it would clear up on it's own, I wouldn't see my GI.

Diagnosed with mild proctitis in March 2007: Treated with Canasa 2x Daily
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 5/12/2009 10:48 AM (GMT -6)   
Your the one paying the bill, and it's your body, do what you think is best. I like how many doctors seem to think they are paying you and know your body better than you do. To much arrogance in the medical field and the sciences.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 5/12/2009 7:30 PM (GMT -6)   
Zippy123 said...
Your the one paying the bill, and it's your body, do what you think is best. I like how many doctors seem to think they are paying you and know your body better than you do. To much arrogance in the medical field and the sciences.
 
I'll counter that by saying that there's also too much arrogance in many patients who believe they're the ones who know best and ignore their symptoms until it's exacerbated to the point of desperation.
 
I've never gotten reprimanded by my doc because he told me to make an appointment if I needed to.
 
I saw him quite a few times the first two years.....eventually, I was able to use the rectal meds on my own accord and pretty much saw the doc about once or twice a year.
 
q
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 5/12/2009 11:24 PM (GMT -6)   
I didn't contact my GI for my last flare. No reason to. He would have prescribed prednisone.

Instead did my own research into natural treatments and used those to get my flare into remission.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/12/2009 11:28 PM (GMT -6)   
Hi tap,

With time comes experiance (and with you having this since a decade ago you know that) I've had crohn's colitis for 18 yrs now and I too learned that I don't have to run to the doc over every little thing, I know my body and disease well enough now to know that when it's time to see the doc it's time and I do go when the time arises. I guess it basically boils down to this, so long as you don't try and kid yourself when things are getting bad and try waiting it out when it's not necessary to do so then that's the main thing, living in denial can be dangerous so as long as you listen to your body then you know when seeing the doc is necessary.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


Clicky
Regular Member


Date Joined May 2008
Total Posts : 166
   Posted 5/13/2009 2:18 PM (GMT -6)   

I dont see the point most of the time they just recommend prednisone (which doesn't work), Remicade (dont want) and surgery (am holding off).

 

However, having said that, I am having an episode and the main thing I worry about is running out of blood - I mean really - how much can you lose every day?  15 - 20X/day mostly blood.  And also - lack of sleep being up all night driving me nuts.  Maybe worth going to get bloods done to check your still alive??


Diag proctitis 97
Major flare and extension to left sided colitis Aug 2006 - present - I have bled every day since Aug 2006 (I quit smoking in June 2006)
 
Imuran (Azathioprine) game me liver damage.
Pred made not difference.
Now on lots Asacol and mesalazine enemas.

Concidering surgury.  Am very fed up.


tap
Regular Member


Date Joined May 2008
Total Posts : 474
   Posted 5/13/2009 4:32 PM (GMT -6)   
I called his office and he decided that he would like to see me (in late June). I have some questions for him unrelated to my flare so hopefully the office visit won't be for naught.
43 - male
Flaxseed (2 tablespoons ground) - once per day; Vitamin D3 - 5000 IU once per day;
Asacol - 2 400mg pills 3 times per day
Diagnosed with pancolitis about a decade ago


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 5/13/2009 5:36 PM (GMT -6)   
When I was flaring this time last year, I emailed my doctor, made an appointment with him, and had a sigmoid done, and then he presribed Asacol. I ended up going off that pill almost 2 weeks later and stayed on my regular medication. I was fine, the flare just needed to run it's course. Sometimes if the flare is just minor then doctors just aren't needed.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade

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