Well i've been diagnosed with UC for over 2 yrs now. Unfortunately i have pan-colitis. The dr started me on Asacol x 3 per day but that didnt do anything to alleviate my symptoms. about 12 weeks ago the decision was made to put me on Steriods. I began a tapered course of Prednisolone, starting at 40mg for 4 weeks and tapering down. I have one more week at 5mg left. However, although i had the first solid stools, it only lasted a few days and then went back to my usual diarrhea.
I have just been for a follow up colonoscopy yesterday and the GI confirmed that my colon is still red and inflamed. Basically i have had a very poor response to steriods. I was under the impression that they mostly did a pretty good job in getting people into remission.
So now, we is suggesting i try a foam enema. Although i dont believe that will work as i have pan colitis and from what i've read it only works for the lower parts of the colon. If that fails, which no doubt it will, then he wants to put me on Azathiopine, which is an immunosuppresant. But i cannot see why that would work if the steriods havent worked??
Has anyone been in a similar position - having tried steriods and not worked, and then gone onto Azathiopine?
After that, he has said that we will have to begin to consider surgery. Although i have pan colitis he said the grade of my condition (from looking at the colonoscopy) is a grade 1. Grade 1 being the least worst and Grade 5 being the worst. Also, i am not aneamic or loosing any blood or seem to be loosing any protiens yet, so surgey would seem a little drastic at this point.
I'm fed up and frustrated and was hoping maybe some of you may have advice from being in a similar position?
Thanking you in advance