Inbetween flare ups?!

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Regular Member

Date Joined Feb 2009
Total Posts : 402
   Posted 5/12/2009 5:12 PM (GMT -6)   
...What are your symptoms (if any) between flare ups? As in what aspects of your Colitis never completely go away and remain an issue?!
22 year old female, from the UK.
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
Currently taking daily: 
40mg Prednisolone tablets
100mg Azathioprine
1g Acetarsol suppository every other night (Previously taking 5mg Pred suppository)
1g Mesalazine granules x 2
7.5mg Zopiclone (taken when needed for sleeping)
10mg Citalopram (anti-anxiety/depression)
Probiotic Multivitamins 

Veteran Member

Date Joined Mar 2009
Total Posts : 1439
   Posted 5/12/2009 6:10 PM (GMT -6)   
I always seem to have some degree of urgency, even when everything else is pretty normal.

Also, I'm always sensitive to EtOH and caff.
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently in remission
Currently taking Asacol (3x/day) and Calcium/D supplements

Veteran Member

Date Joined Mar 2008
Total Posts : 678
   Posted 5/12/2009 6:11 PM (GMT -6)   
In between flares I forget about having UC.
32 yr old female
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon?

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 5/13/2009 6:24 AM (GMT -6)   
While in remission (in between flares) I pretty much put the thought of me having Uc on the back burner. Sure I know I still have it and I take 20 million pills a day but I can go out of the house and not give it another thought. I still have some issues but I think that I may have IBS but after a couple hours in the morning I feel great rest of the day. I may still have a random "attack" in the evening but it's usually because of something I ate.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
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Forum Moderator

Date Joined Dec 2008
Total Posts : 16724
   Posted 5/13/2009 7:21 AM (GMT -6)   
I still have urgency and loose stools once in a while. I also think I have hemmroids and they cause some trouble. Maybe I am not quite inbetween flares yet.

Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day)

Regular Member

Date Joined Oct 2008
Total Posts : 86
   Posted 5/13/2009 12:32 PM (GMT -6)   

I generally feel pretty good between flares.  I do still have to take all my meds and occasionally have a loose or bad BM but I feel fairly normal.  I do however still always know where the closest bathroom is whereever I'm at just in case, guess it's just habit.  :)

Diagnosed January 07 - but realize I've been living with minor flare-ups for 10+ years. 
Asacol 3 pills/3 times a day.

Elite Member

Date Joined May 2003
Total Posts : 30986
   Posted 5/13/2009 3:48 PM (GMT -6)   
Between flares I'm perfect.....the only symptoms I'd have are from certain foods or stress. If I do have a flare coming, symptoms would definitely be continual or increasing.

I do taper rectal meds to a maintenance dosage over a period of, basically, I'm always on meds...albeit minimal during between flares.

*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Serenity Now
Veteran Member

Date Joined Jan 2009
Total Posts : 2153
   Posted 5/13/2009 5:56 PM (GMT -6)   
The only ongoing issue I have is loose stool. I rarely have a large formed stool.
ack, 42, Vancouver BC
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 

Veteran Member

Date Joined Feb 2005
Total Posts : 2103
   Posted 5/13/2009 6:45 PM (GMT -6)   
Every once in a while I get some D/urgency but I attribute it to lactose intolerance and IBS. Everyone is different. I don't think you're digestive system will truly be the same though...
20 year old college student diagnosed in March 2005
Remission since January/April 2006->THREE YEARS!!!!!
Trying Colazal 3 750mg x2 (NOT for a flare, just some linger symptoms?)
I was kind of stupid and started taking the colazal two days before finals week started, so I went back to asacol for the week and will go back to Colazal starting 5/9. Shame on me!!
25mg Elavil
75mg Effexor XR for GAD
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou

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