Hi...your Salofalk dosage isn't high enough, and alternating the dosage seems innefective.
You should be using the enemas nightly for at least a month then see where you are with your symtoms.
Your oral dosage should be about
2500....so, 5 daily or at least 4 daily and increase if you need. Start at the lower dosage and you could split the dosage to twice a day....3 in the morning 2 at night...every day...
You're just teasing your symptoms and you don't have enough consistency with the meds to have your colon heal properly....
I've been on 5ASA for just over 20 years.....and my kidney enzymes are tested regularly.
You need to get the UC flare controlled....for if you're worried about
5ASA...your next options should have you more concerned.
Do what you need to do now....trust me on this, for I've never been as bad as my initial flare, nor as bad as the first 3 years since learning how to use my meds effectively.
You'll eventually understand the need for them...I do understand your reluctance, but for me looking back, the method of using the meds....oral of a proper mid dosage and the enemas nightly to deal with flares until all symptoms are gone. Yes, they are gone at least with me....but patience is needed with the enemas and you cannot hurry them for your body will tell you it's not ready.
Then they must be tapered....I do every second night for about
a month, then every third night...etc to find my maintenance dosage.
In the first years, I was able to go completely off the enemas....but now, I'm on some sort of dosage, and never go any lower than every 4 or 5 nights.
Your goal, ultimately, is to make sure the colon stays nice and quiet.....
If you can take salicylates, you're in the pink....not all can, and they will soon become your best friend considering the alternatives...
I commend your doctor for giving you them for first-line meds....some docs ignore that and prescribe pred.
Do your deal....since it's in your family, you have more of an obligation to do it with a plan rather than so-so.
It does take commitment....and it's worked for me. I hope you have the same success.
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!