Ok, I know I have read that can be the case. Tapering down from 40 mg. - now down to 15mg. (third day). I was sick this morning (nothing new) and could not go with my husband shopping, etc. as planned after his PT. Now, I cried and I NEVER cry - stupid, dumb disease!! Took extra Xanax and now seems to be helping!
Doctor had me raise 6MP to 75 mg. and taper prednisone to 15mg. So far the side effects of this are ok. Still have some blood in stool but well-formed. Just the aching and the no sleep, etc. etc. I felt so much better on 25mg., of course! Wishing the 6MP would do better. I tried steroid enemas two nights and suppositories two night - having problem with them - also, as usual, doing more harm than good. GEEZ - guess just most venting here. You all have been there in some form - just that I am getting too old for this!!
Senior - New diagnosed with proctosigmoiditis - 6/2008 Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009
75mg. 6 MP added on 4/8/2009 - waiting for CBC and Prometheus tests
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.