All In My Head?!

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:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 5/13/2009 10:54 AM (GMT -6)   
Just saw the GI last week, after having 2 weeks of flare-sounding symptoms - lots of noise, gurgling and gas. A little blood, mucus, looser stools.
After a quick sig, he told me it all looked wonderful as in remission. I was floored? I asked him if looking further would show an active spot. he said it would'nt as it all starts in the rectum and it was clear for 25cm.
 
So I asked him how it was possible to be having flare symptoms but be all clear?
 
He said, it could be related to stress or tension which is causing it to act up. Now, I don't beleive stress causes IBD but I sure can imagine that it can exacerbate symptoms. Ya, I happen to be stressful/tense time waiting for grad school replies etc, and I know exactly what my stressors are. I just need to deal witht them:)
 
He advised taking chloraxapate/tranxene which is a very mild tranquilizer. He said it could help the symptoms go away. It's in the Benzo-something class of drugs, same class as Valium. Once he said "Valium" I got the heeby-jeebies. Sheesh! It's not THAT bad, I consider my stress normal though not ideal. I just listened to him talk and nodded my head, as he wrote out the RX. The heck I thought, after all, yeah, i want to see what Valium is all about:)
 
He also doubled my does of Lialda from 2 to 4 a day.
 
I want to hear what your experience has been with somehting like this......please share!
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Reduced to 2tabs 2x a day. Soon had a very mild flare. Upped to 6 tabs 2x a day. Rowasa enemas nightly. Soon replacing that with Cortifoam (generic). Dr. says it's like shooting a mouse with an elephant gun....
 
Muiltivitamin, Iron and Folic Acid supplements


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5181
   Posted 5/13/2009 11:01 AM (GMT -6)   
It seems that your doc is trying to keep you calm while taking your report of increasing symptoms seriously-- because he RXed higher dose of Lialda. Read Julee70's fairly recent thread RE catching a flare in its early stages. You'll likely subdue yours quickly, too. Keep us posted. / Old Hat (30 yrs with left-sided UC; 98% recovered from March flare in sigmoid colon)

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/13/2009 11:15 AM (GMT -6)   
Could it be IBS that's causing your symptoms? A lot of people on here have that in addition to UC. IBS is definitely affected by stress.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 5/13/2009 11:34 AM (GMT -6)   
I'd think maybe it's IBS because I was on 40mg of pred and still having issues.... then had a scope and everything looked in remission even took 30 biopsies and everything looked good.. so all my issues were IBS related. He gave me hyomax for anti spasmodic med and i started probiotics that have seemed to actually help.

I also think that you bumping up to 4 lialda should help ya. I am on 4... now before the scope my old GI told me I could take it whenever I wanted as long as it was all 4 at once.. my new GI that did the scope said to take 2 in the morning and 2 at night.... now I'm not sure, but I think that it's what helped me to start feeling better.. I don't know why...maybe something to do with constantly having lialda in my body? Anyhow...its helped me and I hope it helps you.
Kara, 22F Married.
Latest-Finally tapering off prednisone 5mg every week.. Staying on Lialda 2 twice a day. Currently colonoscopy shows remission. Apparently my symptoms are from my IBS side of my issues.
Medications:Prednisone 25mg, Lialda 2 twice a day, Align probiotic, Anti-spasmodic as needed.
I am so sick of this disease!
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/13/2009 11:46 AM (GMT -6)   
Sounds like it may be IBS then, funny your doc didn't give you that as an explanation cuz from everything I've learned, if there are absolutely no physical signs of inflammation yet you're still having some symptoms then that tends to lead to IBS being the culprit...I have IBD and IBS myself and many here do as well. IBS is related to stress, but blood is not unless you have a hemmie...there must be a small enough area of disease if you're still experiancing some blood and don't have a hemmie.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16277
   Posted 5/13/2009 11:54 AM (GMT -6)   
I wish my doctor would give me something for my nerves and stress. I am so stressed out, I definitely make myself sick and it increases my symptoms. The more stressed I get, the more my stomach churns and the more I feel like I will throw up. I am stressed right now. I need to relax. Maybe your doctor is right. I hope the sedatives help you destress and your symptoms disappear. Maybe you are also having a mild flare but stress definitely isn't helping the situation.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/13/2009 12:15 PM (GMT -6)   
notsosicklygirl, have you asked your doc for anything, or really talked to him about your stress? Maybe you should talk to your GP instead of your GI about it. Zoloft works really well for me, I'm on the lowest dose, and I haven't noticed any side effects from it.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16277
   Posted 5/13/2009 12:54 PM (GMT -6)   
I don't have a GP. I have no insurance and I can't really afford to see any doctors right now. I was thinking about asking my GI for something for my back but I am not sure that is within her capability to treat. I have pain and tightness in my neck and shoulders. I think it is from the stress.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
 


:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 5/13/2009 1:04 PM (GMT -6)   
Thank you all for you replies, especially Old Hat - that was comforting...
 
NOOOOOOO!!!! Don't say IBS, I'm not listening, gonna stick my finges in my ears. It can't be. I won't let it.
Not another diagnosis.....!
 
Anyway, I dont think it is IBS, because its very mild. It only happened after I finished Rowasa (at the same time as taking Lialda) and its quiter now that I upped the Lialda to 4 a day. And I have not other IBS symptoms, thankfully.
 
I'm looking forward to seeing what the rx will do for the stress, though. Gonna pick it up soon....
 
as a side note - a little bit of stress is a good thing. It motivates us to do things. Eustress, I beleive is good stress in that sense. If not for stress like deadlines, we'd have a hard time getting motivated!
Alas, prolonged stress or anxiety translates to lots of other un-fun and potentially serious states.....
I think I have ADD as well, I'm in the middle of diagnosing it myself. The affects of having it is the main reason where I get alot of stress from:) Have a hard time with organization, being chronically late or behind schedule, distorted sense of time etc. I'll spare the details, though I'm looking to get guidance and support for it and see if med works:)
 
in the meantime, back to UC. THankfully, its been quiet since I upped the Lialda and waiting for the blissful sense of deadened stress knots in my stomach.........
 
 
 
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Reduced to 2tabs 2x a day. Soon had a very mild flare. Upped to 6 tabs 2x a day. Rowasa enemas nightly. Soon replacing that with Cortifoam (generic). Dr. says it's like shooting a mouse with an elephant gun....
Small flare after Cortifoam. Switched from Asacol to Lialda (2/day) + 2 months of Rowasa. Flare symptoms after Rowasa. Upped Lialda to 4 daily.
 
Muiltivitamin, Iron and Folic Acid supplements


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/13/2009 1:33 PM (GMT -6)   
Well, maybe you're just experiancing the finishing stages of the last flare you had and you're actually on your way to remission...keep positive thoughts!

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 5/13/2009 2:40 PM (GMT -6)   
You'll find out soon enough if it's an actual flare....bleeding wouldn't be from IBS. The tissue is obviously fragile enough to cause some bleeding....how much did you have?


I'd also suggest you start a fibre supplement as well as probiotics.

What rectal meds were you on....the cortifoam?
Are you still on them?

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 5/13/2009 2:45 PM (GMT -6)   
Quincy-she could be bleeding from hemorrhoids or fissures.

I agree with the people who say it may be IBS.
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently in remission
Currently taking Asacol (3x/day) and Calcium/D supplements


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 5/13/2009 2:53 PM (GMT -6)   
That's true....did the doc not see any? BUT....he did increase the Lialda...which states he's not convinced it's nothing or not flare related.

Fissures can be seen by looking by the person..yep, squatting over a mirror, and the doc should have been able to see them too....but maybe wasn't looking.

Again....fibre supplements and probiotics would be in one's best interest....but with mucus and blood, I'm leaning towards UC-related symptoms.

With fissure or hemmies....rectal meds would help....so, my other suggestion would be to start or use them as maintenance.

A little bit of blood, unless for sure from a fissure or hemmie should be considered a flare.

If it cannot be seen by the siggie...and it continues, I would suggest a c-scope to make sure nothing else is going on.

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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