Need Advice Re: Prednisone

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twoply
Regular Member


Date Joined Jun 2008
Total Posts : 24
   Posted 5/13/2009 5:41 PM (GMT -6)   
Just had my c-scope yesterday and doc say that my lower colon is inflamed. I've been on Colazal for about a year plus mesalimine enemas. about a 1-2 months ago I had a bad flare and GI put me on a Medrisol (?) pack - quick steroid over 5 days plus cortifoam enema. I feel a lot better but still have symptoms. He now wants to put me on 40mg for about 3 weeks.

I have read all the posts and honestly, I am scared after reading all the bad effects this med has. I know it will probably knock down the inflammation but at what cost?

My questions:

1) Am I just reading/hearing the bad news? Are people on Pred with little to no side effects?
2) Is three weeks short enough not to get dependent on it?
3) Should I switch to Asacol (tried Lialda and didn't work) or some of the other 5-ASAs first?
4) What if I stay with my current regimen and tough it out?

My concern is that the Pred will make me feel better quickly and then I'll have a problem tapering as many people do. I'm afraid I'll wind up stuck on it or my condition will worsen if I stop taking it after a while.

Any and all feedback is appreciated!

Thx
Dx w/ UP in 2005; Dx with UC in 2008
Was taking: Lialda and Mesalmine Enema (1x per day);
Now Taking: Colazal (9 per day); can't retain enema any more; tried probiotic (DA) but not taking regularly
Tricor for Cholesterol
Male; age 42; Located in Atlanta


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 5/13/2009 8:01 PM (GMT -6)   
I don't have too many answers to your questions because I don't have experience with pred. I do however think that you need to give it more time. You have to trust your GI and if you don't, you should get a second opinon. His recommended course of action sounds pretty normal to me. I am not the best judge though. I hope you get more responses from people who have more experience with pred.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
 


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 5/13/2009 8:28 PM (GMT -6)   
1) Am I just reading/hearing the bad news? Are people on Pred with little to no side effects?
Not everyone gets side effects from pred. If you're anything like me don't read about all the side effects or else you will develop them. The first time I was on pred I had no side effects.

2) Is three weeks short enough not to get dependent on it?
3 weeks is a short course, I don't believe it is long enough to become dependent. The 2 times I have been on pred it was for 3-4 weeks and it got me into remission.

3) Should I switch to Asacol (tried Lialda and didn't work) or some of the other 5-ASAs first?
I'm allergic to 5ASA's so I don't know.

4) What if I stay with my current regimen and tough it out?
Your current regimen isn't working - you still have inflammation. You could try some non Rx remedies to help with inflammation like fish oil, bromelain and take probiotics.
32 yr old female
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon?


sounga
New Member


Date Joined Jan 2009
Total Posts : 7
   Posted 5/13/2009 8:31 PM (GMT -6)   
wel i have been on pred for about 3 months and have not had any of the bad side effects. the only problems i have had has been tapering down and i do get my symptoms back again, but for most part it is ok in my books lol. also have had no luck with the asacol really.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/13/2009 8:54 PM (GMT -6)   
1) Am I just reading/hearing the bad news? Are people on Pred with little to no side effects?
I was on a pretty short course of pred (40, then 30, then 20, then 15mg for five days each, then 10mg for about 10 days, then 10mg every other day for about two weeks) and the only side effect I had was a bit of moonface and a slight case of the munchies.
2) Is three weeks short enough not to get dependent on it?
I don't think being steroid dependent is affected by how long you are on it, but rather, how bad your inflammation is. I could be wrong, though.
3) Should I switch to Asacol (tried Lialda and didn't work) or some of the other 5-ASAs first?
Asacol and Lialda are fairly similar. Since your inflammation is limited to the lower part of your colon, you might try Colazol, as it starts dissolving lower down, and you therefore might get more med to that lower part of the colon.
4) What if I stay with my current regimen and tough it out?
I guess that's an option, but you might not get any better.

What about steroid or 5-ASA enemas or suppositories?
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


lucasJ
Regular Member


Date Joined Apr 2009
Total Posts : 178
   Posted 5/13/2009 9:09 PM (GMT -6)   
i have had pretty good luck with pred.  it has kicked me into quick remission twice and i have tapered off without recurrence...this current flair i am on did not respond all that well to pred for some reason....finally seems like symptoms are diminishing....seems like rowasa helped a lot this time...my first time on it...i think it has helped if you have not tried it, could ask you doc about it....i have not had any bad side effects of pred....3 weeks would be a pretty short course, i have been on them for about 2 months now....starting a taper this week... was on 40...gonna do 20 for 10 days, 10 for 10 days, then 5 for 10 days and see how it goes....good luck, try to avoid pred if you can, but if you need it, it can be a huge relief...
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