Hi Elaine...I don't know what to tell you except that the suppositories are probably your best bet regarding rectal meds.
I would only assume you are having those symptoms because of the pred tapering....and the suppositories should hopefully help some of the rectal inflammation.
Regarding gas...do you think it's from something you ate? or is it flare related.
With gassss, it's difficult to keep anything at all in sometimes because the gas causes so much pressure.
Maybe you could consider to ask the doc for an antispasmodic?
I still think that maybe a fibre supplement would be to your benefit. Yes, I know the doc said low fibre....but I'm thinking of ways to help get your gut more exercised rather than reacting and then immobilised from using imodium.
Regarding tapering the pred.....maybe if you alternate with your dosages....
If I were suffering endlessly, I'd consider surgery....but I'm not there as of yet.
maybe Imuran or 6MP or Remicade?
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!