IBD Clinic ? What does that mean?

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dothu
New Member


Date Joined Nov 2008
Total Posts : 16
   Posted 5/14/2009 4:36 PM (GMT -6)   
I have been trying to get to remission for awhile -  put on Remicade in October 08 - just finally finished taper off pred in March 09 and about 2 weeks prior to my Remicade in April - I started with the symptoms (won't detail - you all know :)  again -  The Doc told me to wait 2-weeks and check in - which I did today - because the symptoms are getting worse and more frequent.   They suggest going back on Pred at 30 mg for 1 week and then to taper - AND set an appointment with IBD Clinic?   Does anyone have any idea what that means?    Any info appreciated.
 
D.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/14/2009 4:50 PM (GMT -6)   
My understanding is that it's a medical clinic that specializes in irritable bowel disease (UC and Chron's). Are they setting this appointment up for you? I assume you're already seeing a gastroenterologist.

At any rate, I'd call them back and see exactly what they mean for you to do.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 5/14/2009 4:58 PM (GMT -6)   
That also depends on where you live. When I was in England, I had to get referred to an IBD clinic which basically was the IBD/GI department at a local hospital. Out-patients were only seen on certain days of the week (during out-patient clinics).
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Asacol enema occasionally
Spinach & sunflower seed diet / Juicing spinach and carrots


dothu
New Member


Date Joined Nov 2008
Total Posts : 16
   Posted 5/14/2009 5:08 PM (GMT -6)   
Yes I have been working with Gastroentrologist when they set this up with the IBD Clinic -  I was surprised - so I didn't ask enough questions - they made it sound like it was some kind of specialist or something.    I will call them back - good ideas.    Thanks for the replies.  

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 5/15/2009 10:44 PM (GMT -6)   
The question is whether your current doctor sub-specializes in IBD treatment. Probably he/she doesn't since the office where you're being treated is now referring you to an IBD clinic. It also depends on what medical personnel/facilities function in your community or nearby + what kind of health insurance you rely on to cover payment. / Old Hat (30 yrs with left-sided UC ... [etc.])

dothu
New Member


Date Joined Nov 2008
Total Posts : 16
   Posted 5/16/2009 7:16 AM (GMT -6)   
Thanks that it - They are referring me out to someone who specializing in IBD - This whole thing is new to me I did not know that the Gastro Doc was a generalist of sorts and that you needed to go out to a special IBD clinic for the more complex cases. Thanks for all the replies - I was a little freaked out at first - but this info has been helpful.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30611
   Posted 5/16/2009 8:18 AM (GMT -6)   
Keep us posted as to how your appointment goes.

Just for the record...it's Inflammatory Bowel Disease, not Irritable Bowel Disease...easy to get the words mixed up.

q
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


dothu
New Member


Date Joined Nov 2008
Total Posts : 16
   Posted 5/16/2009 9:19 AM (GMT -6)   
Thanks I will - I got a little freaked out because I understood the remicade to be kind of the last stop before discussions around surgery begin - Maybe that is right -
I will let you know.
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