Best prevention meds for UC?

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Regular Member

Date Joined Jul 2008
Total Posts : 298
   Posted 5/14/2009 8:32 PM (GMT -6)   
Ok, so I have finally caved in and I am going to check into getting some prevention meds to help with keeping my UC in remission.  I guess you could say that I'm getting tired of flaring and then putting myself into remission naturally.  The cycle is starting to get kinda old after 14 years.  I want to reduce my flare times and reduce the weight loss I experience.  Even though the weight comes back on, the flare itself is debilitating and dangerous to my professional career. Time for a change. Time to adapt. 
  I'm afraid that one day, as my youth begins to slip away, that I will not be able to count on that as one of my advantages.
So now that Mr. "all natural" has a mouth full of sneaker, I am humbly asking for some opinions from those of you who have sought out treatment options and have found success with maintaining remission.  My health insurance doesnt kick in for a few months still and I cannot go to my GI, as he will not see me w/o insurance.
My family doc is generous enough to work with me and prescribe what I need.  So far I have seen Lialda as being the top choice but I ask if there are any others have used anything that is not mesalamine-based...
Thanks to all in advance.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free   
in remission

Elite Member

Date Joined May 2003
Total Posts : 30998
   Posted 5/14/2009 8:46 PM (GMT -6)   
Hi...why is it that you cannot use mesalamine?...or is it you don't want to use mesalamine?

Lialda isn't necessarily the tops....but some do well on it, others not necessarily so. Definitely worth trying, however.

I would suggest you start at a dosage of 2400mg daily. That's 2 pills. If you need to increase, then at least you can, rather than starting at a high dosage and possibly having some symptoms that might just be mesalazine related.

If you don't want mesalazine, there's other 5ASA meds such as Colazal and Dipentum...

Regarding rectal meds...I strongly suggest you use them...the enemas would be your best bet. Of course, I'm hardcore Rowasa (or maybe Pentasa is available in the US as well).

If you don't want to do 5ASA...there's steroid liquid (colocort) or steroid foam (proctofoam or cortifoam...proctofoam being of lesser amount of steroid medication)).

Where in the colon is your UC...throughout or limited?

Are you having any symptoms at this time?

*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Forum Moderator

Date Joined Dec 2008
Total Posts : 16732
   Posted 5/14/2009 8:54 PM (GMT -6)   
That is insane that your GI won't see you if you don't have insurance. If you're willing to pay out of pocket, he should see you. My GI lets me pay out of pocket, maybe it isn't as lucrative for her but she knows I need help and she accepts that I have to pay out of pocket. I would definitely look for a more open-minded doctor. You may not always have insurance and you need to know that you will be seen.
I am sorry I don't know much about prevention. I am currently taking Asacol. I've been on 9 a day but I am going down to 6. I am also using Canasa in the evenings and hoping to taper down to only using Canasa as needed.
Goodluck finding the perfect balance. I am still working on finding mine. I don't want to take meds forever but Id rather take them than be running to the toilet or fighting a constant flare.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 5/14/2009 9:11 PM (GMT -6)   
I don't know that there is an actual "prevention" med out there, even those that take their meds religiously can still have flares. I do wish for you to have a long remission though.

My bum is broken....there's a big crack down the middle of it! LOL :)

Veteran Member

Date Joined Feb 2009
Total Posts : 735
   Posted 5/18/2009 8:51 AM (GMT -6)   
If I would you I would start out with the cheapest (Sulfasalazine) is my recommendation, generic only cost about $20 for month supply. Then go from there. Asacol is probably your next cheapest.

Basically have to see if you have a good or bad reaction to the meds. All the meds I tried so far tend to give me side effects for some reason, as if my body can't tolerate 5-ASA very well.
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