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Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 5/15/2009 7:21 AM (GMT -6)   
The doctor told me the average UC patient has 10 CT scans in their lives and one CT is equal to 25 to 30 x-rays!

I have had 5 CTs in the last year! 1 head for sinuses, 3 for UC and 1 chest CT for my current lung pain. I have
back pain too and the doctor came in last night and said we are going to do an abdominal CT scan and I refused.
I've had 3 abdominal CT scans in the last 2 months. Enough is enough!

So, how many CTs have you had for UC if any?
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Remicade, Apriso 4/day, Prednisone 10mg per day, Rowasa Enemas 2/day, Culturelle

Had 1st Remicade infusion in the hospital 4/22/09, 2nd infusion 5/7/09 (I think the first infusion put me in remission!)


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2109
   Posted 5/15/2009 10:20 AM (GMT -6)   
I've only had one so far, and come to think of it, I don't recall ever hearing the results of that. I had my colonoscopy (scheduled at the last minute) before the CT results came in and that (the scope) solved the mystery so it was like everyone just forgot about the scan. I'll have to ask my dr about it at my next appt in two weeks.
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 5/15/2009 10:40 AM (GMT -6)   
I had one but I also had a MRI which nobody told be before that it would take over an hour - that was not what I was expecting
Jessica 27/F
Remicade
Apriso/4 pills
Citalopram 20 MG
Align


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 5/15/2009 10:42 AM (GMT -6)   
I had a CT scan for my kidney stones... which are proven to be related to UC.... so does that count? hhehehe
Kara, 22F Married.
Latest-Finally tapering off prednisone 5mg every week.. Staying on Lialda 2 twice a day. Currently colonoscopy shows remission. Apparently my symptoms are from my IBS side of my issues.
Medications:Prednisone 25mg, Lialda 2 twice a day, Align probiotic, Anti-spasmodic as needed.
I am so sick of this disease!
 
 


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 5/15/2009 10:44 AM (GMT -6)   
I've never had one.
32 yr old female
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon?


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/15/2009 11:03 AM (GMT -6)   
I've never had one, but it's not like I've had UC all that long.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 5/15/2009 11:20 AM (GMT -6)   
I've had 2 CTs for kidney stones and one MRI of my head for migraines. All were within a 3 month time period.
  • 26 years old, married, Stay-at-home Mommy to 2 year old daughter 
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Loestrin 24, Allergy meds., Digestive Advantage Sustenex, Maxalt when I get a migraine, Zanaflex to prevent migraines, and allergy shots once a month 
  • 10/6/08 Found a 1cm kidney stone in right kidney.  Had the stone blasted and passed the fragments.

 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 5/15/2009 11:46 AM (GMT -6)   
I've had one and it was one of the worst experiences of my life. I could barely keep the barium down and cried through the whole thing.
Sam(antha)
20 year old college student diagnosed in March 2005
Remission since January/April 2006->THREE YEARS!!!!!
Trying Colazal 3 750mg x2 (NOT for a flare, just some linger symptoms?)
25mg Elavil
75mg Effexor XR for GAD
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 5/15/2009 12:09 PM (GMT -6)   
In the 12 years of UC I only had one CT scan for UC. It was the final test to rule out Crohn's before I headed for surgery.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 5/15/2009 12:35 PM (GMT -6)   
I've had one in the ER when they thought I had appendicitis which turned out to be atypical right sided UC pain. One of the easiest medical tests I've ever had.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


KAREN DOLLISON
New Member


Date Joined May 2009
Total Posts : 11
   Posted 5/15/2009 2:37 PM (GMT -6)   
Well I don't know about the other replies in this trend, but I am completely with you on this one. I had a kidney transplant in 2001, a ruptured bowel in 2004, and now I have just been diagnosed with UC. I have also had many complications from the ruptured bowel such as blockages and severe constipation. I can’t even begin to tell you how many times I have been run through that tube (CT Scan), I would not be far off if I were to say at least 30. It is so concerning to me. Every time I end up in the ER, it’s always the same thing. "Send her up for a CT Scan". I was just released from the hospital yesterday after going through the ER and eventually me admitted due to my current flare up of UC.. I also had been in the ER the week prior where they did another CT Scan. Well on the ER visit (when they ended up admitting me) again they wanted to do a CT scan. I finally said NO! I told them “I just had one 5 days ago--go find that one.” I can’t keep being run through this radiation machine. I am sure this will catch up with me eventually (the excessive exposure to the radiation). It time for me-- like you, to start saying NO! But then you worry---how are they going to find out what’s wrong with me if I don’t let them run the test? It’s a catch twenty two. I sympathize with you.

glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 5/15/2009 3:36 PM (GMT -6)   
I've had UC for 6 years and never had a CT scan. What do they do them for?
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 5/15/2009 4:50 PM (GMT -6)   
The first one I had lower right sided pain which ended up being UC but because I was on prednisone they were thinking appendictis because I had a fever (from the UC)
and prednisone can mask higher fevers and pain. The second one I passed something that resembled colonic tissue so they did the scan to check for perforation - again the result was just
UC. The third one I was running 101 fever and in severe pain with my UC, my primary care doctor sent me to the ER and thats the first thing they wanted to do - again results were UC.
A few days ago I went to the ER with a 102 fever and severe lung pain. They did a chest CT and found I have pleurisy which they said was caused by my Remicade treatment 2 days prior and again
all because of my UC. All four of these CTs were in the last 2.5 months
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Remicade, Apriso 4/day, Prednisone 10mg per day, Rowasa Enemas 2/day, Culturelle

Had 1st Remicade infusion in the hospital 4/22/09, 2nd infusion 5/7/09 (I think the first infusion put me in remission!)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4231
   Posted 5/15/2009 5:42 PM (GMT -6)   
I had one when they were first trying to figure out what was wrong with me. I had several rectal exams first (fun, fun...), stool samples, then an x-ray, then the CT, which showed inflammation in the large intestine, then the colonoscopy. I found the barium really awful to drink, too, because I was extremely sick with the UC at the time. The hospital didn't make me finish drinking it b/c I told them I couldn't drink anymore.


25 years old; diagnosed March 2007;
Currently: persistent rectal inflammation
Asacol, 4 tabs, 3xday; Rowasa nightly; Viactiv; Metamucil wafers; multivitamin; Primadophilus Reuteri; sublingual allergy drops; Ortho Tri-Cyclen


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 5/15/2009 7:11 PM (GMT -6)   
Okay finally someone who couldn't stand the barium either! I had an upper gi series and a CT scan in the same visit and it was just horrible (but I was 15 at the time too)
Sam(antha)
20 year old college student diagnosed in March 2005
Remission since January/April 2006->THREE YEARS!!!!!
Trying Colazal 3 750mg x2 (NOT for a flare, just some linger symptoms?)
25mg Elavil
75mg Effexor XR for GAD
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4231
   Posted 5/15/2009 7:28 PM (GMT -6)   
Yeah, that barium stuff is probably the nastiest concoction I've ever had to drink. I can't believe I'm saying this, but I think I'd rather drink the GoLytely stuff. I like your Maya Angelou quote. =)

That must have been really hard to deal with at 15. It was hard enough for me at 23. You must have been brave.


25 years old; diagnosed March 2007;
Currently: persistent rectal inflammation
Asacol, 4 tabs, 3xday; Rowasa nightly; Viactiv; Metamucil wafers; multivitamin; Primadophilus Reuteri; sublingual allergy drops; Ortho Tri-Cyclen


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 5/15/2009 9:47 PM (GMT -6)   
I'd take scope prep over that stuff anyday!
Sam(antha)
20 year old college student diagnosed in March 2005
Remission since January/April 2006->THREE YEARS!!!!!
Trying Colazal 3 750mg x2 (NOT for a flare, just some linger symptoms?)
25mg Elavil
75mg Effexor XR for GAD
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/15/2009 10:30 PM (GMT -6)   
Never had one. Around 10 years with this mess now.
Proctitis DX 1999, Pancolitis DX 2008
Immuran
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3+Ca/1000mg DHA


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/15/2009 10:30 PM (GMT -6)   
Never had one. Around 10 years with this mess now.
Proctitis DX 1999, Pancolitis DX 2008
Immuran
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3+Ca/1000mg DHA


Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 5/16/2009 10:33 AM (GMT -6)   
callalily22 said...
Okay finally someone who couldn't stand the barium either! I had an upper gi series and a CT scan in the same visit and it was just horrible (but I was 15 at the time too)


That barium stuff is AWFUL! I gagged the entire time! uggh!
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Remicade, Apriso 4/day, Prednisone 10mg per day, Rowasa Enemas 2/day, Culturelle

Had 1st Remicade infusion in the hospital 4/22/09, 2nd infusion 5/7/09 (I think the first infusion put me in remission!)


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2109
   Posted 5/16/2009 12:02 PM (GMT -6)   
Hmmmm.... I didn't have to drink any barium when I had my CT scan. They pumped some dye into me via an IV. Maybe I had a different type of procedure.
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 5/16/2009 1:28 PM (GMT -6)   
I have had 3 cat scans, and 2 mri none was UC related. I must be strange I just have them mix it with water and not that sweet stuff and it not that bad. although with one of them they found out I have diverticulitise also. I cant do the dye but they say that it is no fun at all. My girlfriend had the dye said it felt like her hair was on fire.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 5/16/2009 8:20 PM (GMT -6)   
ack you probably were injected with iodine. I had that too. It feels like something warm in crawling through you veins and you feel like you have to pee but don't.
Sam(antha)
20 year old college student diagnosed in March 2005
Remission since January/April 2006->THREE YEARS!!!!!
Trying Colazal 3 750mg x2 (NOT for a flare, just some linger symptoms?)
25mg Elavil
75mg Effexor XR for GAD
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4231
   Posted 5/16/2009 8:31 PM (GMT -6)   
I had the IV contrast (dye) AND the barium. I found out I was allergic to the IV contrast so they had to have a doctor come in and inject me with Benadryl!
25 years old; diagnosed March 2007;
Currently: persistent rectal inflammation
Asacol, 4 tabs, 3xday; Rowasa nightly; Viactiv; Metamucil wafers; multivitamin; Primadophilus Reuteri; sublingual allergy drops; Ortho Tri-Cyclen


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 5/16/2009 10:50 PM (GMT -6)   
I had the dye and the barium too! My SIL had a very good friend in high school die because she was allergic to the iodine they injected. Scary...
Sam(antha)
20 year old college student diagnosed in March 2005
Remission since January/April 2006->THREE YEARS!!!!!
Trying Colazal 3 750mg x2 (NOT for a flare, just some linger symptoms?)
25mg Elavil
75mg Effexor XR for GAD
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou

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