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Liza D
Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 5/15/2009 10:44 AM (GMT -6)   
I am so tired of this flare. I started Humira this week and I have seen no change. I am on nothing else and I can't wait two weeks for these meds to start working. I am bleeding sooooo much. I lost the baby this week and I just need a darn doctor to talk to me. You can't just tell me that I might need a transfusion and to be patient. I was patient three weeks ago!

Do I need to pass out before my doctor sees me?
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)

Meds:Bump up every couple years... You name it, I've used it! Sulfasalizine, Asacol, Rowasas, Pentasa,
Remicade, 6mps... And now it looks like the once daily Lialda taken twice a day isn't enough...
Here comes Humera.

Regular Member

Date Joined Apr 2008
Total Posts : 191
   Posted 5/15/2009 11:08 AM (GMT -6)   
Lisa I'm so sorry for you I don't think you should be patient and put up any longer you really do sound like you need to see someone,you may be dehydrated an anemic,so even if you are admitted for some iv fluids and a transfusion it would be something,you've just lost the baby,your hormones will have taken nose dive just that alone is enough to cope with,I can't advise drugs wise as I have not had humira,but I really wish you well,try to be brave I know its hard,don't give up hope that things will get better and you will get through this,wisding you all the best Anna

Regular Member

Date Joined Apr 2006
Total Posts : 192
   Posted 5/15/2009 11:24 AM (GMT -6)   
I don't have any advise, but I just wanted to say that my heart goes out to you during this difficult time. I wish you the best.

Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 5/15/2009 12:01 PM (GMT -6)   
Oh, Liza, I'm so, so, so sorry. ((big hugs))
Does prednisone work for you and can you tolerate the side effects? If so, maybe you could get your doctor to give you and Rx for that to give the Humira some time to work.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).

Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 5/15/2009 1:59 PM (GMT -6)   
If you're bleeding excessively, you should go to the ER. Sometimes that's the only way to get the medical attention you need.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.

Veteran Member

Date Joined Feb 2009
Total Posts : 1916
   Posted 5/15/2009 3:13 PM (GMT -6)   
I am so very sorry for your loss Lisa. Yea, if you don't feel well and are bleeding badly, go to the ER until you get some help. God bless and good luck. Thoughts and prayers are with you.
diagnosed 1/09 with colitis,54 yo, colazal, fish oil, synthroid, cymbalta

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 5/15/2009 7:26 PM (GMT -6)   
((((Liza)))) I am so, so sorry about your baby.
Co-Moderator Crohn's Forum.

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