I have UC. 58 year old family man. Diagnosed in 2016. I was on Humira for 3-1/2 years and things were going great.
It took 8 weeks for the drug to kick in back then, but I got into remission and pretty much lived a normal life BM wise.
Felt like I had mild IBS. And what goes along with that.
I then got pneumonia in the spring of 2020 (related to being on Humira? Only God knows)....and the ER doctor said “let’s come off the Humira to get over this pneumonia.”
When the pneumonia finally went away I went to my GI and basically talked him into letting me try to stay in remission with just diet and exercise. He wasn’t a fan ...but said ok.
He said it was rare...but...possible to stay in remission this way. I wanted to give it a go.
I got about
6 months in... Then...wah wah...started to have problems.
Now I’m trying to get back into remission.
He started me back on the Humira with the maintenance pens of 40 ml.
6 weeks of that.
No good...going 4 to 6 times a day.
He said, let’s switch over to the induction package of Humira.
I pumped in 160 ml, then 15 days later, pumped in an 80 ml pen.
Nope....still 4 to 6 times a day. Very loose. No blood.
So...went to see him yesterday...I’m thinking with all that time off ....maybe I built up antibodies? My blood recently checked in at 0.8 mcg of Humira in my system and my GI said we are looking for 2.0 or greater.
I guess 0.8 means...SOME Humira is getting into my system...but obviously not what is needed.
Just had 5 year anniversary colonoscopy...all good.
So...he wants to keep pumping the 80 ml (double dose) into me every two weeks to see if that will do the trick.
I’ll keep you guys posted. He said if this doesn’t work he will be switching me to remicade.
I value this forum greatly!
Post Edited (Rusty Barr) : 5/25/2021 7:46:29 AM (GMT-6)