Humira Double Dose

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diaper man
Regular Member


Date Joined May 2009
Total Posts : 122
   Posted 5/15/2009 11:24 AM (GMT -6)   
Has anyone tried double dose of Humira and did it work. My doc is recommending that I go to 80ml every two weeks instead of 40ml every two weeks.  
 
Thanks

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16289
   Posted 5/15/2009 1:54 PM (GMT -6)   
Sorry, I have never tried it. You may want to ask on the Chron's board too. Maybe you will get more response. There are quite a few people on this UC board who are on Humira. Hopefully someone knows.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 5/15/2009 8:13 PM (GMT -6)   
I'm now double (weekly) dosing- will see how it goes. Remicade was losing its effectiveness within 2 weeks (this for a drug that is supposed to last 8 weeks between doses), and Humira has only been lasting a week for a drug that is supposed to last two between doses) so weekly Humira for the time being. With remicade I was getting joint aches after a few months, and an elevated ANA so I guess my body was rejecting it/ booting it out of the blood and thus wouldn't last. On Humira the only sign of allergy so far has been a mild soreness at the tip of my lips (got that with Remicade too but it was worse), and it seems to be abating with each injection so I'm hoping that my body is getting used to it now. Either that or it is getting booted out so fast that it too will soon be useless. Time will tell.


Pancolitis >20 years, allergic to all 5ASAs
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up 
Remicade Humira, lots of probiotics, entocort, tapering pred again, maybe surgery this year
 
 


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 5/15/2009 8:53 PM (GMT -6)   
I've done the double dose every 2 weeks for almost 2 years. My doctor kept me on 2 shots to make sure my remission would hold. It's worth a shot. I went down to one shot in January, and am doing fine. Good luck!
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


diaper man
Regular Member


Date Joined May 2009
Total Posts : 122
   Posted 5/16/2009 7:36 AM (GMT -6)   
Thanks for replying. I was concerned with the side effects also. Double dose and double side effects like prone to more infection. My doc says nobody really knows. What did you docs say about it? Most of my colitis is in the last part of the colon/rectum and the single dose of Humira has helped but not completely.
Humira


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 5/16/2009 7:51 AM (GMT -6)   
I agree with your doctors from what you have said that the double dose would help completely. Personally, I doubt you will be prone to more infection while taking 2 shots instead of one. I never really had a problem, I work in child care, and I really never got sick while taking 2 shots. I'm sure that in the long run you will see a huge difference. I never really asked my doctor about the extra infection, I did ask though about my observation on the website seeing what the site had said about proper dosage, and my doctor said that 2 shots is a normal dosage for IBD, I believe especially with flares. I was trying to go down to 1 shot, but my doc kept me on it til this past Jan. I'm thankful for it too.

When I was first on this medication, I was still getting under control. The 2 shots helped in general. I'd trust your doctor, it sounds like he/she knows what they are doing.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


diaper man
Regular Member


Date Joined May 2009
Total Posts : 122
   Posted 5/16/2009 7:59 AM (GMT -6)   
Thank you Sweetie. Could not resist. I feel a little more compfortable know. I just have to get approved by my insurance company know for the extra dose. This stuff is expensive.
Diagnosed Crohns/Colitis Jan 2007.  Allergic to 5sa. Currently taking Humira and Hydrocortisone suppositories.
Colits in last part of Colon.


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 5/16/2009 9:04 AM (GMT -6)   
You're welcome, hope all goes well with insurance.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade

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