terrified..doc said i may have dysplasia

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

confusedgirl22
Regular Member


Date Joined Dec 2007
Total Posts : 228
   Posted 5/15/2009 10:49 PM (GMT -6)   
Hello. I'm 24 yrs old. I was diagnosed with colitis this past December. I have been taking Lialda for it . I had my second colonoscopy today. The doctor took lots of biopsies and told me I might have dysplasia. He said he'd let me know next week. He said dysplasia is benign but precancerous. I'm so sad. I keep crying. I have anxiety and depression. My dad might have liver cancer. I'll know next week when they remove his liver tumor. It seems like everything bad is happening one by one. I'm so scared. Does dysplasia mean I'm going to have colon cancer? Please help. :-(
 
-Terrified

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 5/16/2009 1:18 AM (GMT -6)   
How scary--to have had two colonoscopies done so soon and to have been given this news. It can't be that bad if your GI had just given you a colonoscopy back in December. Even if you do have dysplasia, there is a good chance your doctor saw it in time for it to be just low-grade dysplasia. To my understanding, the risk of low-grade dysplasia turning into high-grade dysplasia and, eventually, cancer is low. High-grade dysplasia is a more advanced progression towards cancer. However, it is still localized and treatable.

I was told that the treatment for high-grade dysplasia is usually colon removal. Don't feel so bad if this is the news. There are many people who have had their colons removed with great success, and colon removal will mean no chance of getting colon cancer. I think the colon might also be removed for low-grade dysplasia. It think it depends on several factors, including how long you have had UC and the extent of the dysplasia.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16287
   Posted 5/16/2009 7:09 AM (GMT -6)   
Have you ever had an abnormal pap? It's the same thing, they check for changes in the cells. I had a precancerous polyp a few years ago and I couldn't afford a colonoscopy for a long time. I finally got one the other day and the biopsy showed no dysplasia. I thought I would have colon cancer for sure after having the precancerous polyp. I didn't even have any polyps. I wouldn't stress, your doctor was wrong to scare you. Without the results of the biopsy, it is pointless to mention dysplasia. If you did have low grade dysplasia, you would probably have to be watched very closely but it wouldn't be reason to stress right now. Wait and see what happens. Take it easy and try not to focus on the biopsies so much. I am sure they will come back fine. Mine did and I went 2 years with no medical treatment because I couldn't afford it. I was worried I had cancer everyday.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
 


confusedgirl22
Regular Member


Date Joined Dec 2007
Total Posts : 228
   Posted 5/18/2009 11:22 AM (GMT -6)   
I've never had an abnormal pap. Today I found out I do not have dysplasia! I'm so relieved! :-)

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 5/18/2009 12:48 PM (GMT -6)   
That's good news. I hope you get good news about your father too.

I think those of us whose colons are monitored might have less chance of getting colon cancer, because they catch those precancerous polyps early and snip them out! My doc says none of her UC patients have developed cancer.

Peace to you.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; used prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion). 
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ 


lol?
Regular Member


Date Joined Mar 2009
Total Posts : 53
   Posted 5/18/2009 1:37 PM (GMT -6)   
What was the reason for the 2nd colonoscopy in such a short time period from your 1st one, if you don't mind me asking? My doctor said I will probably not need another one in 3 years or so.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16287
   Posted 5/18/2009 7:46 PM (GMT -6)   
That is great. I am so happy for you!
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa at night + Probiotics + Iron - So far so good!!!
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 5/19/2009 1:11 AM (GMT -6)   
I am so glad you don't have dysplasia. I would have been so scared if my GI had told me I might have dysplasia.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


confusedgirl22
Regular Member


Date Joined Dec 2007
Total Posts : 228
   Posted 5/20/2009 11:40 AM (GMT -6)   
Thank you for your support! The reason I have to get a colonoscopy done every 6 months is because I have mild UC and my doctor wants to take biopsies to check for dysplasia every 6 months.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, June 22, 2018 5:10 PM (GMT -6)
There are a total of 2,974,381 posts in 326,171 threads.
View Active Threads


Who's Online
This forum has 161254 registered members. Please welcome our newest member, Bozorama.
240 Guest(s), 8 Registered Member(s) are currently online.  Details
Gunner823, summer16, The Dude Abides, Girlie, NiceCupOfTea, Tall Allen, carnut, lapilot