A little bit of advice please...

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qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 5/16/2009 2:56 PM (GMT -6)   
Ok, so like most people on this site I'm feeling pretty rubbish at the mo, just started on Azathioprine and back on the Pred. And apart from the lovely toilet habits I'm feeling quite nauseous most of the time, and so exhausted after doing the slightest things.
 
Anyway, a really really close friend of mine and her 2 young daughters have invited me to go on holiday abroad with them for 2 weeks in August. My friends husband died last year of cancer and so it was an awful time. I am still struggling with the loss myself as he was like a 2nd dad to me. My friend has paid for this holiday for me and she said she wants me there as a big thankyou for the help I have been for her and the girls during the terrible time, and also because it is the first family holiday that they have had since he died and she wants me to be a part of it for her and the girls.
She knows I'm not at all well at the moment and has been so incredibly supportive throughout the last few months and keeps saying 'Oh I hope you'll be ok for the holiday...for your own sake as well as mine!' . And she asked me the other day if I was excited about it and I was like "Erm well I'm just trying to take one day at a time at the moment." I didn't know what else to say. I almost feel like I don't want to go, I worry if I'm still feeling like this then I might be holding them back from doing the things they want to do. And because she has paid alot of money in order for me to go, and so I want to be able to do all the things she has planned. I was planning on paying her some of it back, and at least be able to take a bit of spending money with me, but my contract at work is being halved because I'm not able to manage full time hours because of the UC and I have basically no sick pay left.
 
I can't pinpoint what the reason is exactly but I just don't really want to go and am not particularly looking forward to it.
Theres alot of sensible people on here so I wondered if you had any advice?! smilewinkgrin
22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect!
Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
40mg Prednisolone tablets
100mg Azathioprine (started taking 11th May)
1g Acetarsol suppository every other night (Previously taking 5mg Pred suppository)
1g Mesalazine granules x 2
 
Motilium (anti sickness)
7.5mg Zopiclone (taken when needed for sleeping)
10mg Citalopram (anti-anxiety/depression)
Probiotic Multivitamins 
                             
                             


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/16/2009 7:18 PM (GMT -6)   
What sort of holiday will it be? Will it be an active, walking, swimming, sporty kind of holiday, or lie-on-a-deckchair-and-be-lazy sort of holiday?

Will it be in a culture like yours, where the food will be reasonably similar, or is it somewhere with a very different (and maybe even spicy) food culture?

btw, would you be able to edit your signature so that it is less than ten lines long, please? Long sigs put heaps of pressure on the HealingWell server and, ultimately, cost Admin money.

Good luck with your decision,

Ivy.
Co-Moderator Crohn's Forum.

New meds thread


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 5/17/2009 3:24 AM (GMT -6)   
Sorry about the sig, I've amended it now :)
 
Well the holiday would be reasonably active although I guess I wouldn't have to go on all the outings if I didn't feel like it. Although one of the trips is a weekend in Disneyland Paris. And the holiday is to France so the food is reasonably similar so that shouldn't be a problem I don't think.
22 year old female, from the UK. Diagnosed with Ulcerative Proctitis Jan '08. Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect! Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
40mg Prednisolone tablets, 100mg Azathioprine (started taking 11th May),1g Acetarsol suppository every other night, 1g Mesalazine granules x 2 
Motilium (anti sickness), 1.5mg Zopiclone (taken when needed for sleeping), 10mg Citalopram (anti-anxiety/depression), Probiotic Multivitamins 
                             
                             


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/17/2009 11:30 AM (GMT -6)   
I would go! I know that the azathioprine and pred can take a lot out of you, but I wouldn't let that stop me! I was taking azathioprine and pred while I was 22 also. That same year I went on a field excursion in Utah for 6 weeks and did a coral reef study in Bermuda. I was tired but the experiences are priceless! Who better to go with than people you love!!!! I know this may sound a pit preachy but the reason I even type to you is that I found while I was concentrating on another task my fatigue and uc was not as bad! I was so caught up in the beauty and excitement of something new that my uc took a little break. I had severe...i mean SEVERE uc... and this helped me so much! Good luck!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 5/17/2009 2:58 PM (GMT -6)   
glaciergrl said...
I would go! I know that the azathioprine and pred can take a lot out of you, but I wouldn't let that stop me! I was taking azathioprine and pred while I was 22 also. That same year I went on a field excursion in Utah for 6 weeks and did a coral reef study in Bermuda. I was tired but the experiences are priceless! Who better to go with than people you love!!!! I know this may sound a pit preachy but the reason I even type to you is that I found while I was concentrating on another task my fatigue and uc was not as bad! I was so caught up in the beauty and excitement of something new that my uc took a little break. I had severe...i mean SEVERE uc... and this helped me so much! Good luck!

 
Thankyou! Yer maybe you're right, I guess if I feel that bad I can just lie on the beach the whole time and get a tan haha :P Thankyou though that makes alot of sense - concentrating on something else!
22 year old female, from the UK. Diagnosed with Ulcerative Proctitis Jan '08. Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect! Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
40mg Prednisolone tablets, 100mg Azathioprine (started taking 11th May),1g Acetarsol suppository every other night, 1g Mesalazine granules x 2 
Motilium (anti sickness), 1.5mg Zopiclone (taken when needed for sleeping), 10mg Citalopram (anti-anxiety/depression), Probiotic Multivitamins 
                             
                             


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/17/2009 3:36 PM (GMT -6)   
I agree w/ glacier girl. It is paid for. You can be sick in your toilet at home or sick in a toilet in a hotel in Paris. Or you can get to Paris and feel great. Don't feel pressured to go on all the excursions. Just go on the ones you are up to.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 5/17/2009 4:39 PM (GMT -6)   
I'd pay careful attention to your "gut feeling" of not wanting to go. You're only a few months out from two hospitalizations. How are you feeling day-to-day? How bad are your current symptoms?
 
I'm one of those who would choose not to take a trip such as you describe when I'm feeling very ill and fatigued. When I was in a moderate to severe flare, I wouldn't have dreamed of traveling. I wanted the comfort and security of my own home, clean bathrooms, soft bed and control over my diet. It's part of my personality, but I wouldn't want to go and feel a constant pressure to keep up, be active and upbeat and not be a party pooper. I would also be afraid of becoming more ill while in a foreign country.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 832
   Posted 5/17/2009 7:26 PM (GMT -6)   
Just go, and do as much as you can ;)

And have fun..

You can stay home and be sick or you can have fun and be sick.

I know it is hard but maybe you will have a good day.

I am going on a week long trip on Tuesday and my crohn's really sucks at the moment but I am not skipping the trip.
I just try to do everything I can to be more comfortable.

Just lots of pain meds and immodium ;)

Good luck and have fun..
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 5/19/2009 10:51 AM (GMT -6)   
Don't let this disease suck the life out of you! There is more to you than this! Enjoy yourself! Then let us all know how it went!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 5/19/2009 11:04 AM (GMT -6)   
Thankyou everyone for your replies...And as much as I agree with you princesa about paying careful attention to my 'gut feeling' I'm wondering if maybe I just go and be very careful and make it clear to my friends that there may be some activities I don't end up doing. You asked about my current symptoms - day to day I'm incredibly lethargic and 'not with it' (partly due to the meds I'm sure), but my actual 'toilet' symptoms are improved now I'm back on the higher dose of steroids.
 
I already feel like I've lost out on a lot due to this disease, and my last holiday was not as good as it could be due to everything flaring back up again whilst I was away..so maybe I don't let it get the better of me with my holiday this time.
 
Thankyou smilewinkgrin
22 year old female, from the UK. Diagnosed with Ulcerative Proctitis Jan '08. Hospitalised Jan '09 for 3 days IV Hydrocortisone - had no effect! Hospitalised Feb '09 for 7 days (5 days - IV Hydrocortisone)
  
Currently taking daily: 
40mg Prednisolone tablets, 100mg Azathioprine (started taking 11th May),1g Acetarsol suppository every other night, 1g Mesalazine granules x 2 
Motilium (anti sickness), 1.5mg Zopiclone (taken when needed for sleeping), 10mg Citalopram (anti-anxiety/depression), Probiotic Multivitamins 
                             
                             

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