good and bad times of the day? other questions.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Jen O
Regular Member


Date Joined May 2009
Total Posts : 136
   Posted 5/18/2009 3:41 AM (GMT -6)   
I was wondering if you guys have different times of the day that are good and bad for your UC symptoms.

I saw my new GI doc on Friday and I have been eagerly awaiting the test results from the blood and other samples that he took from me then. I have been writing a lot of things down, something that I haven't really done before.

I have noticed that I have UC symptoms from about 5:00 pm to 8:00 am (overnight and in the early morning!) and very little stuff in between there. But enough to worry about that I called off work again today. I better not call off tomorrow or there will be lots of paperwork for me to fill out then! :(

Now, I don't know if I'm lucky that I'm not running to the bathroom around the clock and that I can be semi-normal during the day? I still have the joint pain that I have been having for about a week all day and all night long. That is helped by ice / cold packs. Tylenol does nothing for me. I really wish I could take some Advil but we all here know that that's a no-no during a flare especially! My primary care doc gave me a script for Tramadol for the joint pain, it helped a bit more than the ice does, but I think it is why I got little to no sleep last Thursday and Friday nights so I quit taking it. Anyone ever find another pain killer that we UCers can take?

The past 2 nights, I have also been waking up when I have to use the bathroom SOAKED in sweat. So much so that I have to change my clothes. Why is that happening? Do I have some kind of infection? I guess I should ask the Dr. about that?

I love this forum, you guys are great at answering my questions!

Jen
Age 34
Diagnosed with UC September 2008
Current Meds:
Remicaide
Just started taking Asacol 1200 mgs 3 x per day 5/7/2009
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Multivitamin


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/18/2009 6:03 AM (GMT -6)   
I've always had night sweats while in the middle of a flare and that is pretty common actually. Even having a mild fever if you've ever had that too. As for the joint pain, some people don't have issues with *some* anti-inflammatories. When I was having massive joint pain, my docs tried me on several anti-inflammatories. The only one I can take is Celebrex. I bleed super easy and if I take otc Nsaids, I start bleeding within a day. But if you don't want to go that route and just need a pain pill to help you sleep you can try any medication that contains codeine such as Tylonel #3. I can't take codeine so I usually take Darvocet when things get bad.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 5/18/2009 8:38 AM (GMT -6)   
For me it usually, but not always, I would feel best in the mornings and worse later at night. I don't have joint pains, but I am talking like cramping or upset tummy feelings, totally random light abdominal pains.

I think the sweating is normal when your body either is fighting an infection or thinks it is. There in is the problem with them not exactly knowing the cause of UC or Chrones, is it a real infection they don't find or just your body attacking itself.

allfortheking
New Member


Date Joined May 2009
Total Posts : 7
   Posted 5/18/2009 9:00 AM (GMT -6)   
For me the worst time of day is early morning. Usually right as I get up I have the urge to use the bathroom sometimes 2 or 3 times within the first hour. Every day is a struggle. I have no idea how I have held a job for this long, being that I have to be there early in the morning. Also for some reason if there is any kind of drastic weather change it upsets my UC even worse and makes getting ready twice as long.

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 5/18/2009 9:02 AM (GMT -6)   

Mornings were and still can be (sometimes) the worst for me. I used to call 11:00 am my wake up time because until then I had a terrible time bathroom wise and the worst "brain fog" ever. It seemed after 11:00 am, everything eased up.

Oh, and welcome to the forum, Jen O! :-)


Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16728
   Posted 5/18/2009 9:21 AM (GMT -6)   
Mornings were always the worst for me. When I was in a bad flare, I remember nights I woke up 5x drenched in sweat. I would have to run to the toilet and stay in their for 20 minutes with pain and cramping. It was awful.
 
I am happy you got a second opinion. What did he think? I hope you can get results from medication. Blood tests usually come back pretty quick. Maybe you will hear something today. Keep me posted!
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/18/2009 9:45 AM (GMT -6)   
My mornings are usually worse. It's the reason I wake up at 5:30, just so I can be ready to go to the office when I need to.

I am prone to night sweats too. Not fun waking up soaked, changing and throwing on the robe just so I can lay back down in bed.
Proctitis DX 1999, Pancolitis DX 2008
Immuran
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3+Ca/1000mg DHA


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/18/2009 2:00 PM (GMT -6)   
Mornings are still my worst (most active) time of the day but I find with IBD bathroom trips can be very random even if you're not having alot of frequency, this disease is so stupid and annoying to say the least.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 5/18/2009 2:07 PM (GMT -6)   
Mornings were tough and, when I flared, after dinner I would get spasms and feel like I needed to go every 15 or 20 minutes! Very annoying. Thanks goodness for the DVR.

I get night sweats from prednisone (I thought) and also from being pre-menopausal. But only my chest would get sweaty. It is weird but not uncomfortable.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; used prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion). 
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ 


Tommy S
New Member


Date Joined Feb 2009
Total Posts : 12
   Posted 5/18/2009 4:25 PM (GMT -6)   
When I was flaring bad, I got night sweats really bad too, worst thing was I was in hospital for almost 4 weeks having these sweats and going to the Loo through the night constantly. Didn't get a proper nights sleep for the best part of the 3 weeks, it was awful.

I like coming on here, but it just makes me depressed reading through how we suffer.

Got to keep the ol' chin up I guess.

Test Flyer
Regular Member


Date Joined Feb 2009
Total Posts : 27
   Posted 5/18/2009 7:08 PM (GMT -6)   

 First thing in the morning (there is no leisurely laying around in bed) is when my symptoms are most active.  Gas starts around bed time (9pm or so).  Sometimes sleep is interrupted at 2am or other random times.  After 8AM, I'm fine - no symptoms at all.  Maybe it's the best it will ever be for me.

My wife says I'm "doing pretty good", since she remembers years ago where I was running into the bathroom all day and night. 

 


Left side UC
diagnosed 1990
Azulfidine medicated
 


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 5/18/2009 7:33 PM (GMT -6)   
Mornings and nights are worse for me....seems to ease up around 10am until about 6-7pm.... I have been having the night sweats too....some nights I get up soaked and have to change... That is a new one for me - have had this a long time and never had the sweats like that until this flare...
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Started left-sided UC, most recent scope shows pancolitis
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections weekly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1916
   Posted 5/18/2009 9:15 PM (GMT -6)   
Yep, mornings are the worst for me too, generally speaking. I can tell by the way I feel when I wake up. My joint pain went away after taking meds for about 2 months, I am happy to say. One less thing to worry about! I am still trying to figure out all the dietary stuff. Welcome to the forum. It is great.
diagnosed 1/09 with colitis & diverticulitis
 54 yo, colazal, fish oil, synthroid, cymbalta


PinkPaperclip
Regular Member


Date Joined Mar 2009
Total Posts : 108
   Posted 5/19/2009 8:39 AM (GMT -6)   
My colon wakes me up every morning around 5 am , I go to the bathroom and go back to sleep until 9, then I take my prednisone and feel fine until after dinner... So the worst time of the day is between 4 am and 7 am and after that between 6 pm and 10 pm...
Diagnosed with severe pancolitis 03/09
Prednisone 40 mg, Imuran 100mg, 2nd Remicade infusion next week.
Mulitivitamin, calcium supplements, probiotics
Seroquel 12.5mg, Paxil 10 mg  (for anxiety, since 2003)
 


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 5/19/2009 6:16 PM (GMT -6)   
When I used to sweat like that, I would put a fan directly on me all night. Its cold at first but I wouldnt end up changing shirts and sheets every hour lol
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 5/19/2009 6:22 PM (GMT -6)   

When I'm not "flaring", mornings are the worst for me.  I'm in a pretty bad flare right now so the whole day has been bad.  Latley I've been getting the sweats and very bad urgency at night to run to the bathroom.

I feel like my urgecny at night is spured on whenver I roll over on to my side...does this happen to anyone else?


Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
6MP - 50mg - started 5/04/09
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3  
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso
Sunflower Seed & Spinach Diet - Started 4/26/09


Canadian Chick
Regular Member


Date Joined May 2009
Total Posts : 60
   Posted 5/21/2009 7:34 AM (GMT -6)   
Mornings are really bad for me too. Does anyone know why that seems to be the trend? I also find that rolling on my side triggers it... interesting...

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/21/2009 9:18 AM (GMT -6)   
yup, mornings bad, as the day goes on the symptoms ease, until by the evening I'm ready to rock! I get up around 6:00am, to leave the house by 8:30, & run to the bathroom URGENTLY anywhere from 4-6 times. Sometimes more, sometimes less. The night sweats are a common extra-intestinal manifestation of UC- they're horrible! I can remember waking up soaked & freezing, to the point where I'd have to take a shower in the middle of the night to warm up. Then my bed would be damp too, gross. I found putting a bath towel on the bed helped- at least that way, you can change your pajamas, take off the towel & put down a new one, & get right back to bed & be fairly warm & dry. I don't think you're on pred, but that will cause night sweats also.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 10:20 PM (GMT -6)
There are a total of 3,005,618 posts in 329,243 threads.
View Active Threads


Who's Online
This forum has 161786 registered members. Please welcome our newest member, Wildcat44444.
284 Guest(s), 7 Registered Member(s) are currently online.  Details
Tim G, pasayten, Girlie, Healing98, mordant, Stetsonva, MacroMan