Back on the Pred :(

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Jen O
Regular Member

Date Joined May 2009
Total Posts : 136
   Posted 5/18/2009 3:24 PM (GMT -6)   
Hey all!

Just to update you guys: Blood work is back, stool cultures are back. All is normal. Still waiting for the Remicade antibody and concentration levels. Eventhough the old GI told me that my UC is "refractory to steriods, " I'm going back on the Prednisone tomorrow! :( I so hate the stuff. But I hate feeling like I am right now even worse, so I'll guess I'll give it a try.

He also wants me to stay on the Asacol. I did mention to him that I have actually been getting worse since I started it, but he thinks it's the flare, not an intolerance to the drug.

On the advice of my husband, I have tried to lay around less today than I have been. I have just been sitting around feeling sorry for myself and he thinks that that is making things worse. Maybe he's right.

I took a walk with my daughter this afternoon, she pushed her baby doll in its stroller and I got a bit of natural vitamin D. I guess that maybe I do feel a bit better, but almost didn't make it back home (we walked 2 blocks out and 2 back).

Thanks again to everyone for letting me vent and giving me re-assurance. I am just still so new to this darned UC but so frustrated!

Age 34
Diagnosed with UC September 2008
Current Meds:
Just started taking Asacol 1200 mgs 3 x per day 5/7/2009
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day

Veteran Member

Date Joined Jun 2008
Total Posts : 2865
   Posted 5/18/2009 5:06 PM (GMT -6)   
Sometimes all we can do it "try"!  By the way what does
refractory to steriods mean.  Never heard it before.  Just so many new things to learn around here.
Tomorrow I do for monthly blood tests to check how 6 MP is doing as far as CBC goes, etc. and also getting prometheus tests for same medication. 
Glad you got out.  I know exercise ALWAYS makes me have to "go"!!
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 
Now 75mg. and 15mg. prednisone for a week. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.

Regular Member

Date Joined Sep 2007
Total Posts : 365
   Posted 5/18/2009 6:35 PM (GMT -6)   
I never felt Asacol did anything for me...I take it however. I wish I could stay on Pred - so far its the only thing that has worked for me....although this flare has been rough - below 30mg I start bleeding again...
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Started left-sided UC, most recent scope shows pancolitis
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections weekly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"

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