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Tinamarie
Regular Member


Date Joined Feb 2009
Total Posts : 28
   Posted 5/18/2009 7:31 PM (GMT -6)   
Sorry I have no idea where to really put this post so I hope this is ok since atm I am dealing with colitis.
 
I had a combination of surgeries in December - the first included a STARR procedure for the intussusception (removal & resection of part of my bowel) and then later a temp ileostomy.  Since the reversal of the ileostomy, I've been diagnosed with colitis and it's really been beating me up....the colitis/proctitis is especially bad around the resection site of the bowel. 
 
Today, I saw my original surgeon who checked with a scope and found that the area of the resection did not heal properly.  The staples are exposed, the area is inflamed & is bleeding.  He also feels that this is the cause of narrowing stools.  He has scheduled me for surgery Jun 9th for a proctoplasty where he will make an incision around the staple line and use that tissue to cover the staples and suture that together.  Anyone ever had this???????  Thank God, it's supposed to be outpatient so that sounds better than the weeks I've spent in the hospital already.
 
He said if after 3 mos, I am still experiencing narrowing bowel movements, he would follow up with botox treatments for muscle spasms. 
 
On a side note, I see my gastro specialist tomorrow.  No pun intended but this is all a pain in the a@@ (figuritively & literally)
 
Thanks all for your input and help
 
Tina

Please shorten your signature to 10 lines per forum rules

Post Edited By Moderator (Red_34) : 5/21/2009 8:41:14 AM (GMT-6)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 5/19/2009 8:24 AM (GMT -6)   
Hi Tinamarie, and welcome to Healingwell. Sounds like you have been through heck! Have you tried posting this on the ostomy forum or at www.jpouch.org? The folks on those forums might have more answers for you since most of us have not been through the surgery; although we do have folks who have had surgery come back to help others who are contemplating surgery etc., which is a huge help. So maybe they will pop in with an answer. Good luck with the Gastro doc tomorrow, I hope he can provide you some relief.

Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/19/2009 11:54 AM (GMT -6)   
Have you been diagnosed with ulcerative colitis or just a generic diagnosis of "colitis?" If so, I'm curious as to why your doctor isn't talking about removing the whole colon since you have to have another surgery anyway.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


Tinamarie
Regular Member


Date Joined Feb 2009
Total Posts : 28
   Posted 5/21/2009 12:33 AM (GMT -6)   
Thank you both for your replies.

Lonielane, thank you for the suggestions of where to post for support. After the visit with my gastro dr, I've found out that it isn't truly colitis but protitis brought on bc the stapled/resectioned area never healed properly. So I guess other support areas would be better. Just a bit discouraged right now..it sounds like it all stems from complications from the surgery....I think I have a ways to go yet.

Please shorten your signature to 10 lines per forum rules

Post Edited By Moderator (Red_34) : 5/21/2009 8:41:35 AM (GMT-6)

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