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gleam
Regular Member


Date Joined May 2009
Total Posts : 28
   Posted 5/18/2009 7:38 PM (GMT -6)   
I guess I've been coping with UC for about a decade. I never really thought it was a problem, I just figured I pooped a lot. My friend's even nicknamed me pooper. I started bleeding about 4 years ago, not a lot just a little if I had a flare up (I wasn't aware that it was a flare up at the time.) Anyhow, I had a really bad week during Thanksgiving of '07 and thought about seeing a GI. I put it off until about 5 weeks ago, when a close friend was diagnosed with colon cancer.

So I went in and had a full scope done. The doctor said I have a mild-moderate case of UC. The odd thing about it is that reflecting on my life it seems that it started right around the time I started taking Amoxicillin (Anti-biotic) for Rosacea. After reading up on it, I really thought I had C-diff but I had a stool test done and it's normal.

I am now five weeks into my treatment process and it's now manageable. I take Lialda once a day and a generic probiotic, sometimes I add a multi-vitamin, and sometimes vitamin-c. I now wake up and take my first BM within 15 minutes and take the longer BM around 6-7pm. The only real problem left to deal with is FATIGUE! I'm so exhausted, that I have to drink Monster energy drinks to keep from passing out. It could partially be due to six hours of sleep and a total work day of 7am-6pm (includes drive time). Does anyone have a fix for fatigue with UC?

P.S. I'm really drained after a BM. Some people suggest to drink water during the BM.

Thoughts?

Thanks In Advance!

mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 5/18/2009 7:40 PM (GMT -6)   
Are you currently taking any meds at all for your UC?
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Started left-sided UC, most recent scope shows pancolitis
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections weekly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"


gleam
Regular Member


Date Joined May 2009
Total Posts : 28
   Posted 5/18/2009 7:49 PM (GMT -6)   
Lialda (mesalamine 1.2mg)- once a day.

mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 5/18/2009 7:54 PM (GMT -6)   
derrr....I read right past that...sorry... Sounds like your UC is under control for the most part... I deal with fatigue as well but mainly due to flaring and the meds I am taking... Have you had bloodwork done to check for Vitamin B-12 deficiency? I recently had that checked and am now taking B-12 therapy...i.e. shots...it can really make you feel tired/fatigued if you are deficient...
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Started left-sided UC, most recent scope shows pancolitis
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections weekly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"


gleam
Regular Member


Date Joined May 2009
Total Posts : 28
   Posted 5/18/2009 8:24 PM (GMT -6)   
Good question, I had blood work done, the GI said, I was perfectly healthy and I should be for my age, 34. That said, I know Monster Energy drinks have B-12 in them, I wonder if it's enough? LOL

P.S. Great signature, I've done that a few times! ><

mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 5/18/2009 9:54 PM (GMT -6)   
I was surprised when I got the B-12 syringes and vial prescription... If your colon isnt absorbing B-12, you have to take them via needle... So I am a B-12 junkie now...

I guess the fatigue just goes along w/ the territory...

Yes the signature is my way of putting some humor to reality I suppose... It has worked many times, and honestly I prefer it to some of the nasty public restrooms around...
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Started left-sided UC, most recent scope shows pancolitis
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections weekly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 5/18/2009 11:55 PM (GMT -6)   
Hi..welcome to the forum.

You really aren't on enough medications to help deal with the inflammation in total. The 1200 dosage of Lialda is a bit low....but with that being said, you had best to maybe ask the doc for rectal meds as well to deal with that inflammation.

ARe you eating actual food? Please make sure you are consuming at least 3 - 5 small meals a day...definitely get enough protein.

When do you go back to see your doc?

Did the doc take lots of biopsies?

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


gleam
Regular Member


Date Joined May 2009
Total Posts : 28
   Posted 5/19/2009 6:08 PM (GMT -6)   
Quincy said...
You really aren't on enough medications to help deal with the inflammation in total. The 1200 dosage of Lialda is a bit low....but with that being said, you had best to maybe ask the doc for rectal meds as well to deal with that inflammation.


I'll ask him next visit about that.

Yes I eat food, I normally start my day out with a granola bar and water/monster drink/mountain dew: code red. I've read that caffiene, high frutose corn syrup, and carbination drinks can cause problems, but I haven't noticed. For lunch I eat some sort of chicken or non-red meat with another granola bar. Dinner is pretty much anything since I'm near the bathroom in case something doesn't jive with my UC. I'm very regular every day and never constipated unless I eat my favorite food, pizza. Although prior to taking Lialda and pro-biotics having a BM felt like constipation in the area of the UC, kinda like pushing around a golf ball. The doc said the colon wall has a rough texture and it's swollen while inflamed thus the reason for the weird constipation sensation.

I don't have a schedule date to see him again, he said come see me in a couple months, it's been about 4.5-5 weeks.

He did take biopsies.

P.S. that's a lot of stuff you take!

quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 5/20/2009 12:09 AM (GMT -6)   
Hi...I meant actual food and not soft drinks or granola..especially for breakfast.

Maybe you could consider to change your diet a bit...that might help with some of the discomfort/urgency..etc, plus help your digestive tract get on with digestion in a more balanced sense.

Could you have an egg for breakfast and maybe rye toast or something thats not so "rough"?

Fibre is definitely important, but maybe you will have to consider a fibre supplement rather than whole grains.

You should eat your calories rather than drink them....can you drink tea or something that's not a constant sweet intake fluid-wise?

I'm not anti-sugar, but you're really not eating balanced from what I see.

Keep in mind that if you eat something now and you have the urge to use the bathroom...it's from what you ate long ago..not that instant.

You still need rectal meds....it's good you know what's causing the sensation, but you have to get the inflammation down and controlled.
Remember that UC starts at the rectum....if you only take an oral med...it won't treat the rectum.

When do you get the results of your biopsies?

Yeah, kind of lots of stuff....but not really. Do you mean the meds or the supplements?

I suggest you eat more food that will give you more fuel for the day. More protein...the kind you actually eat, and once you get the inflammation under control, your energy level will increase.

How are you sleeping?

Oh, did I mention you need rectal meds? Maybe make the appointment with the doc and not wait for the 3 month mark.

Keep well,
quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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