Thanks, yuckygut. Yeah my thought is that with IgG low and in the "negative" range (albeit not zero), it means CMV is probably not infecting my gut in terms of symptoms,... but I wish I could be sure. From my reading so far, eradicating CMV is very very difficult. On the other hand, thanks to low dose prednisone dependence, I hardly ever get so much as a drop of blood or even pink mucus in my stool.... in fact most of the time my stool is formed. But if I came off pred completely I would flare. I'm going to run by my CMV concerns with my GI and see where I can run with it, or if maybe this is a baseless concern. But if I get the collon removed now, I'll always wonder "what if" it was just due to CMV.
Pancolitis >20 years, allergic to all 5ASAs
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up
Remicade Humira, lots of probiotics, entocort, tapering pred again, maybe surgery this year