First Remicade Infusion...Yay!

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LibraryChick
New Member


Date Joined May 2009
Total Posts : 13
   Posted 5/19/2009 3:47 PM (GMT -6)   
Hello everyone.  Just wanted to thank everyone here for being so encouraging.  Lonielane wanted me to keep everyone updated on my first Remicade infusion because I was so nervous about it.  I had my first one yesterday, and it was a piece of cake.  I don't want to jinx anything, but I think there has definately been an improvement.  I'm not 100% yet, obviously, but for the first time in many, many months, I've used the bathroom with no blood at all.  I'm very hopeful, also for the first time in a long, long, LONG time.  Wish me luck, and for any of you out there about to start the 'cade (and everyone else for that matter), good luck to you too!

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 5/19/2009 3:51 PM (GMT -6)   
Yay! It worked for me right away. I've had just two infusions so far.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


LibraryChick
New Member


Date Joined May 2009
Total Posts : 13
   Posted 5/19/2009 3:56 PM (GMT -6)   
I was very skeptical at first.  I was diagnosed in 2004 and it's been nothing but downhill since then.  Everyone I've talked to said Remicade might be just what I needed, and even the nurse who administered the infusion said she's gotten extremely positive feedback.  I guess I'm just happy that I'm feeling relatively good for a change, and wanted any other scardy cats like myself to know that there's nothing to be nervous about. :-)

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/19/2009 4:03 PM (GMT -6)   
Glad it seems to be making a difference already! I hope you keep improving! :)
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 5/19/2009 4:25 PM (GMT -6)   
Yeah for you!! I felt a little silly about all my nervous posts pre-Remicade when I got my first infusion and saw what a piece of case the whole process was. I dragged my daughter along for the first one because I was afraid of being alone if I had some kind of reaction, poor thing was bored out of her gourd, but she was 17 at the time and understood why I wanted her to tag along.
47 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!

15 Remicade infusions, current scheduled every 6 weeks: 1st: 7/21/07; most recent: 4/25/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 5/19/2009 4:28 PM (GMT -6)   
Hey LibraryChick, glad to hear the great news! I'm happy that the infusion was a piece of cake for you and that your symptoms are beginning to diminish. I hope things keep improving for you! *****Hurray*****

Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 5/19/2009 5:15 PM (GMT -6)   
Glad it went well and I hope you continue to see improvement!
32 yr old female
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon?


Hopeful4uc
Regular Member


Date Joined Jun 2009
Total Posts : 90
   Posted 6/15/2009 3:38 PM (GMT -6)   
I start on Tuesday 6/23 with my first infusion with Remicade.  I'm also very, very uneasy about starting Remicade as well.  I have UC that developed into pancolitis within 4 years after first UC dx of proctitis.  Within the 4 years I have tried many meds and currently on 4 Lialda's a day, tapering off prednisone currently at 15mg, (but my body has the aches and pains now as well) and rowasa 1 nightly.  This has helped, but I had reaction to the prednisone (effecting my legs) and blood vessels.  I just pray that this works for me.  Question:  Did you feel ok right after the treatment?  No flu like symptoms for 24 hours, etc?  Now that's it been a few days, are you still doing ok?  I'm so ready to try this, because I barely have the energy to work, and cook dinner for the family. 
Signed.
Hopeful4UC 

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 6/15/2009 3:57 PM (GMT -6)   
Hey hopeful, I was the same way before Remi. I was very sick, couldn't function at all! I was actually looking forward to the infusion as I hoped it would bring the relief I was looking for...and it did. Good luck with your infusion. p.s. I've always felt pretty good after the infusion; during it I usually sleep, so a nice nap is always great! Now my infusion time is down to 1 1/2 hours so I take Zyrtec or Claritin instead of the Benedryl, which makes me less sleepy.
Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


Hopeful4uc
Regular Member


Date Joined Jun 2009
Total Posts : 90
   Posted 6/17/2009 7:26 PM (GMT -6)   
Hey Carol!  Thanks for the encouraging words!  I am looking forward to my first treatment, because I need to feel better.  I am just trying to get through the weekend with commitments, fun ones, but it will take alot out of me.  I really hope this works, and I hope I respond well with very minimal side effects.  Even now tapering off the prenisone (below 20mg) I'm starting to feel bad again and more trips to the bathroom (Ugh).  I'll let you know how it goes.  Anyway, thanks for the words!! What a journey this has been...I think I would of picked something else, but it picked me.
Signed,
Hopeful :-)

AngelaPaige
Regular Member


Date Joined May 2009
Total Posts : 28
   Posted 6/17/2009 8:06 PM (GMT -6)   
Hey. I would be nervous too. Im glad it went ok and I hope that it continues to help. good luck.
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