Flaring...Bad!!

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Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 5/19/2009 7:49 PM (GMT -6)   
So I'm in the middle of a pretty bad flare, probably the worst one that I've had since I was diagnosed back in Nov.  The flare has been going on for a few weeks now but has seemed to get really bad the past few weeks.  I'm going 8-10 times a day with A LOT of blood and urgency.  For the first time ever I've been losing sleep because I have to run to the bathroom which really stinks, literally!
 
I started 6mp just about 2 weeks ago and am going to start 30mg of Prednisone to hopefully get rid of this flare while the 6mp hopefully kicks in.
 
Did I every mention that I hate this disease?
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
6MP - 50mg - started 5/04/09
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3  
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso
Sunflower Seed & Spinach Diet - Started 4/26/09


Jen O
Regular Member


Date Joined May 2009
Total Posts : 136
   Posted 5/19/2009 8:02 PM (GMT -6)   
I am right there with you. I was diagnosed in September last year and am now 1 month into a "flare" that can't be quieted. The Remi doesn't seem to be working anymore, but awaiting some blood tests to be sure. Back on the Prednisone again. Knees and neck are killing me. I don't know if I can keep going to work. Just kind of frustrated and ready to figure this darned disease out!

You are not alone! :) This place really makes me feel great in that there are others who are exactly like me, but awful that we all have to suffer so!

Good luck with it all!

Jen
Age 34
Diagnosed with UC September 2008
Current Meds:
Remicaide
Just started taking Asacol 1200 mgs 3 x per day 5/7/2009
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Multivitamin


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 5/19/2009 8:04 PM (GMT -6)   

Not a lot to say but "good luck" and hope everything works out for you.  I do believe after three months on 6 MP for me that it is kicking in and working.  Be patient and hopefully the prednisone will help in the meantime as it has for me. 

Yes, hate this DD too!!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 
Now 75mg. and 15mg. prednisone for a week. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 5/19/2009 8:09 PM (GMT -6)   
Thanks guys and gals!

Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
6MP - 50mg - started 5/04/09
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3  
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso
Sunflower Seed & Spinach Diet - Started 4/26/09


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 5/19/2009 8:24 PM (GMT -6)   
Hope you find relief soon!
32 yr old female
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon?


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 5/19/2009 8:47 PM (GMT -6)   
I am going through a similar flare....started in November....I was put on 40mg pred and it eased up....as I tapered it came back worse than before....Just started Imuran about 2 weeks ago, and tomorrow I am in for a colonxpy - yipppppeeee I love those...(actually i dont mind the phentnyl skull )....just finished up my 3 hour poopathon prep (read 1/2 of "Fleeced" though)....and am starved to death....yea, I am loving uc.... so many people float through life with no worries....would be nice.
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Started left-sided UC, most recent scope shows pancolitis
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections weekly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"


quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 5/19/2009 11:55 PM (GMT -6)   
Hi..well, I'm going to ask....any rectal meds in your regimen? If not...why?
You should try them....

We all hate having UC...no doubt about it.

q
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/20/2009 7:36 AM (GMT -6)   
I don't think I've "met" a single person here that LIKES having Uc! LOL Yes this condition is horrible no doubt about that. Hang in there and I hope that you get this flare under control quickly.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 

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