Immodium question

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Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 5/19/2009 9:35 PM (GMT -6)   
Can taking immodium long term cause any problems? My son has Crohns (I know this is the UC forum but I love you guys so much). It's pretty much under control except for the morning bathroom routine (several times over the first few hours waking up). He has found that taking 2 immodium in the morning allows him to have one nice movement. He feels fine the rest of the day. It allows him to work (he's a mechanic). It hasn't changed the color, consistency or anything else of his bowel movement, just the number of times he goes a day. I figured I would ask the experts here for their opinions. I thought possibly cutting it down to one pill a day to see how that works.
Thanks in advance for your help.
 
By the way, Bratcat is doing great! Can you believe it's almost a year since her surgery?!
--Mom of bratcat (18 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect! Living and loving life as a teenager should!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 5/19/2009 10:10 PM (GMT -6)   
I have a pill much stronger than Immodium,(lomotil) and my GI just told me to take it for as long or as often as needed.
Ulcerative proctitis. On Asacol 3 3x a day, and Meslamine enemas nightly.
 Now on Hydrocortisone suppositories for 2 weeks
 Doc now has me on prescription Pepcid, and Questran. Just started that 05/15, so will wait and see.
Urgency is still my biggest problem, and extreme gas.  Blood is now gone.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 5/19/2009 10:21 PM (GMT -6)   
My doc has said it's not a problem to take it as maintenance drug. I had a prescription for it once, to be taken daily, before it became available over-the-counter.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 5/19/2009 10:52 PM (GMT -6)   
A lot of doctors say no because of the risk of toxic megacolon. My GI told me its fine as long as I'm taking the correct dose and things are moving fine. I've never had a problem with it. It literally got me through high school. One thing though, if you take it regularly you could be masking symptoms so I'd be mindful of that.
Sam(antha)
20 year old college student diagnosed in March 2005
Remission since January/April 2006->THREE YEARS!!!!!
Trying Colazal 3 750mg x2 (NOT for a flare, just some linger symptoms?)
25mg Elavil
75mg Effexor XR for GAD
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou


Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 5/20/2009 10:07 AM (GMT -6)   
This is how I'm living right now. I take immod. about every four days and am GREAT and then on the 4th day here comes the D and lots of blood. I just called the GI and have an appointment for 2:45 this afternoon. My problems started after GI wanted me to drop to 3 Lialda a day from 4 and I got smart on my own and dropped 6MP from 75mg to 50mg. He's always bragging that I'm such a great patient by always taking my medicines properly and doing research. Haven't decided if I will admit what I did with the 6MP dosage. I have been back on full doses of both and Canasa for three weeks with no improvement. I'm wanting to try a steriod foam or supp. because the Canasa isn't making a difference. Not really a fan of enemas and won't take pred. EVER again. I'd be fine taking immod. every 4 days but now I'm worried it's making it worse somehow b/c on the 4th or 5th day I have PAIN and lots of watery blood. Took 2 immod. this morning just to get off the toilet and get my little girl out of bed.
  • 26 years old, married, Stay-at-home Mommy to 2 year old daughter 
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Loestrin 24, Allergy meds., Digestive Advantage Sustenex, Maxalt when I get a migraine, Zanaflex to prevent migraines, and allergy shots once a month 
  • 10/6/08 Found a 1cm kidney stone in right kidney.  Had the stone blasted and passed the fragments.

 


fitmom00
Regular Member


Date Joined Mar 2008
Total Posts : 113
   Posted 5/20/2009 11:42 AM (GMT -6)   
MommyPooh, you sound just like me. I (being so, so smart) decided to drop my Lialda from 4 to 3 to save some money and here I am with the worst flare ever! Canasa and Rowasa never worked for me. I am with you on the Pred - I'd almost rather be sick. I'm beginning a trial drug tomorrow called Colal-Pred that delivers the steroid right to the colon so has little to none of the usual Pred side effects. You should see if Prometheus is doing a study in your area. Another bonus, you get $375! :)
Renee
Diagnosed w/ UC in August 2007
Was in remission for almost one year (using only Lialda 4xday)
Rowasa and Canasa did not work.
Current status: In Flare since May 2009

4 Lialda/day maintenance, healthy diet
Starting Colal-Pred trial May 18, 2009


Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 5/20/2009 12:13 PM (GMT -6)   
Renee,
So glad to hear I am not alone. Even the immod. has failed me this morning for the first time. I was only better for a few hours after taking immod. I wrote down the medication you mentioned and am going to ask my GI about it this afternoon. Thanks so much!!
  • 26 years old, married, Stay-at-home Mommy to 2 year old daughter 
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Loestrin 24, Allergy meds., Digestive Advantage Sustenex, Maxalt when I get a migraine, Zanaflex to prevent migraines, and allergy shots once a month 
  • 10/6/08 Found a 1cm kidney stone in right kidney.  Had the stone blasted and passed the fragments.

 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/20/2009 1:01 PM (GMT -6)   
I bought some immodium couple weeks ago just to give a try. Doesn't dehydrate me as bad as the lomitil, but also takes several to notice a difference. I have been doing 1 lomitil in the morning when I first get up, still ha ve a couple bm's and go on about my day. Just experimenting to see what works.
Proctitis DX 1999, Pancolitis DX 2008
Immuran
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3+Ca/1000mg DHA


Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 5/20/2009 4:54 PM (GMT -6)   
Saw GI this afternoon. He said using immod. is fine but he has trouble with some patients taking too much of it and then getting constipated. I told him I was only taking 2 pills every few days and he said that is fine and to continue to do as I felt.
He's keeping me on all meds and we are adding a steriod enema. I am supposed to do one every night for a month and then if things are better, we go to every other night. I don't know the exact name of what he gave me yet because I don't have it yet. The pharmacy said they were going to have to order it and I could pick it up tomorrow. Kinda glad I'm off the hook for it tonight. I hate the enemas! He said they will get a much larger area treated than a supository. UGH!!
  • 26 years old, married, Stay-at-home Mommy to 2 year old daughter 
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Loestrin 24, Allergy meds., Digestive Advantage Sustenex, Maxalt when I get a migraine, Zanaflex to prevent migraines, and allergy shots once a month 
  • 10/6/08 Found a 1cm kidney stone in right kidney.  Had the stone blasted and passed the fragments.

 


puffed rice
Regular Member


Date Joined Feb 2008
Total Posts : 495
   Posted 5/20/2009 8:48 PM (GMT -6)   
I take 1 lomotil every morning after the first couple BM"s and I am great for the rest of the day.  I have been doing this for the last couple of years now and it never constipates me but then I take metamucil every evening before bed.  Without that 1 lomotil I would never be able to get out of the house first thing in the morning.  My doctor said it was fine to take daily he actually told me to take 2  every so many hours but that is not needed 1 does the trick for me.

Diagnosed with Ulcerative Colitis 1995
Salofalk Tablets , salofalk suppositories or cortifoam nightly
Bio-K Probiotic daily
multivitamin
metamucil nightly

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