Hi cuties mom,
My son is 17 & 4 years ago he was dx with IC, sometimes UC. He was refractory to all western meds & consequently was put on very high doses of steroids IV. This did leave him with permanent hand tremors, muscle flacidity and more...it did not work for his UC either. We took the alternative route and one time he was tried on increasing doses of glutathione drops, orally. It may have worked for a short time and he was put on ever increasing doses; he was going trough many bottles a day until we gave up. In retrospect, I do not think it did much. We have been through it all-acupuncture & Chinese herbs, cranio-sacral therapy, osteopaths, of course, nutritionists, hypnotists and more. He has tried every supplement, vitamin, remedy out there.
This brings me to today and he is on a regimen that seems to be helping (his primary sx was bleeding and sometimes lots of it). He is on RF+, Isatis cooling and Krill oil. He did start bleeding a couple of months ago when I was reducing the pills and I had to increase dosages & started Krill oil at that time. Right now he is taking 2 RF+, 2 Isatis cooling & 1 Krill oil in the morning. I consider this maintenance.
To think a few years back, his GI had a room set up so that he could receive Cyclosporin-so glad we did not pump his little body with more stuff that quite possibly may not have worked.
I do not know how long he will be on the upswing but this is what we are doing.