I've had one GI tell me that I have should use Remicade indefinitely; another GI told me to only use it for a year and then to wean off to 5 ASAs. Now I'm seeing a 3rd GI and getting his opinion.
But I know what you mean about worrying about long-term use of Remicade. But I really don't want to have surgery (I think my quality of life is better now than it would be after surgery) and I'm definitely risking that if I go off of Remicade. As of right now, my family wants me to go for surgery and I want to stay on Remicade. It's a tough decision. Sorry I can't be any more of a help!
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP, 1 Primadophilus reuteri, Remicade (7 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3 DS, Turmeric