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ithurtsmom
Regular Member


Date Joined Nov 2006
Total Posts : 289
   Posted 5/19/2009 10:25 PM (GMT -6)   
My daughter (7) had her Ped. GI appointment today and I asked him about Asocol and if it ever stops working.  Dr. W said statisitcally most 5ASA's stop working after 2 years and the patient has to move on to stronger meds.  Why, they have no idea (It amazes how little they really know.  Most answers are "We don't really know")
 
I'm a little surprised and very concerned.  My daughter has had UC since she just turned 5 and the end of May she will be 8 - she has been doing great.  What is the longest you have been on 5asa's succesfully and if you flare does it bring you out of it?
 
Thanks.
Joan
 
Daughter 7, UC
Asacol 2X2 plus 1x daily
Omega 3
Folic Acid 1000mcg.
Fiber
Probiotics
calcium
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 5/19/2009 10:49 PM (GMT -6)   
For me, it's been 20+ years, and I intend to continue forever..lol!

Is your daughter able to use any rectal meds, because, that would be helpful to her for lower colon inflammation.

I wouldn't know what to think....but I would say the reason for the failure could partially be patient non-compliance or sensitivity to 5ASA or that the patient has been started on too high of a dosage and had to stop.

Not so cut and dry from my perspective.

If your daughter's doing well...I suggest you continue with the 5ASA until the time is as such...but there are also other 5ASA meds, both oral and rectal...plus, she can increase as needed and tapered to a maintenance.

I see she's on calcium....what about vitamin D...has she been checked regarding her levels?

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


qazwsx12
Regular Member


Date Joined Nov 2008
Total Posts : 63
   Posted 5/19/2009 11:19 PM (GMT -6)   
for me theyre pretty weak and i pop asacol like tic tacs, dont even know if its doing anything. when i first developed colitis i was put on asacol and thats the only time asacol alone brought me into remission, probably for about 4-6 months before i flared again. now i just look at asacol as a side dish to the stronger meds i depend on like humira and prednisone when humira fails.

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 5/20/2009 4:00 AM (GMT -6)   
For me Asacol works wonders and pentasa. I started out on a low dose and made sure the doctors started me out on a low dose. I agree with quincy. If your daughter is doing well keep to the pentasa. Don’t surrender to the higher durgs unless absolute necessary. Even though my symptoms have been worse than before I am still taking pentasa. I have had no blood or mucus in my stool for the last 6 weeks. Lets just hope I can combat the rest of the symptoms.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 5/20/2009 4:43 AM (GMT -6)   
Asacol doesnt seem to do much for me....actually I think it causes me to have more urgency...
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Started left-sided UC, most recent scope shows pancolitis
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections weekly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/20/2009 6:33 AM (GMT -6)   
I was on Asacol for 12 years when it stopped working for me. Strike that, Asacol "seemed" to help but it never really put me in remission. Of course back then they didn't have much of a choice of Uc meds. Then Colazal came on the market and it did much better on that. But I wouldn't worry about it losing it's effectiveness because most people do well on it for years and years. Take one step at a time and if she seems to get worse then by all means contact the doctor to try a different medication.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16282
   Posted 5/20/2009 6:34 AM (GMT -6)   
You guys scare me. I hope I don't flare againf or a long time.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa at night + Probiotics + Iron - So far so good!!!
 


ithurtsmom
Regular Member


Date Joined Nov 2006
Total Posts : 289
   Posted 5/22/2009 11:19 PM (GMT -6)   
Thank you all. Quincy - yes she is also on D and had many tests run when she was first diagnosed. I do not think that she had the scan for bone density. If she only has flared once (in the beginning) would the test your talking about be necessary?

She has blood tests every 3mths
Eye exam once a year
TB test once a year


Pentasa brought her out of her original flare within one week (pancolitis). So I'm hoping it continues to work well for her (now on Asacol - because she can now swallow pills)
Joan
 
Daughter 7, UC
Asacol 2X2 plus 1x daily
Omega 3
Folic Acid 1000mcg.
Fiber
Probiotics
calcium
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 5/23/2009 12:28 PM (GMT -6)   
Hi...I was meaning vitamin D levels...that in itself is important, especially to recognise lower levels in kids.

Please remember that if she gets a stint of being constipated...that could mean she's having low in the rectum inflammation.
That would be a good time to consider rectal meds.

It's great your daughter is doing well.

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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