For me, it's been 20+ years, and I intend to continue forever..lol!
Is your daughter able to use any rectal meds, because, that would be helpful to her for lower colon inflammation.
I wouldn't know what to think....but I would say the reason for the failure could partially be patient non-compliance or sensitivity to 5ASA or that the patient has been started on too high of a dosage and had to stop.
Not so cut and dry from my perspective.
If your daughter's doing well...I suggest you continue with the 5ASA until the time is as such...but there are also other 5ASA meds, both oral and rectal...plus, she can increase as needed and tapered to a maintenance.
I see she's on calcium....what about
vitamin D...has she been checked regarding her levels?
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!