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Veteran Member

Date Joined Mar 2009
Total Posts : 765
   Posted 5/20/2009 5:14 AM (GMT -6)   

How do you know the extent of your UC. Can you tell by the symptoms you have? I had a colonoscopy about 4 years a go. But the hospital lost the records, now they do not know the extent of my UC.  I think I have left sided UC as I have had some pains on my left side.Yes there are some good things about the uk NHS but there are some really crappy things. That’s why Michael Moore in his movie didn’t do as much on the uk hospitals as he did on the French.

Female 32 years old
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
Other medical problems- Born with asthma- no medication taken for this.

Regular Member

Date Joined Jan 2009
Total Posts : 498
   Posted 5/20/2009 6:06 AM (GMT -6)   
I feel it would be better to have a colonoscopy for proper diagnosis. Generally, I have been getting the colonoscopy, every year during my UC days. Since the last C you had was about 4 years back, it is better to have one now to rule out anything.

Have a good day. Take care
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 5/20/2009 6:35 AM (GMT -6)   
Usually they base the extent on the severity and location of the ulceration upon visual examination from a scope. If you look in the resource section on this forum, I have a post about the severity and extent. I technically have left sided because that is the extent of it when I was at my worse. But lately my flares have been been limited to the rectum.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
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Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 5/20/2009 10:28 AM (GMT -6)   
I have pancolitis and when I was at my worst I was going 15+ times a day with lots of urgency. My GI said, however, that someone with just a couple of inches of inflammation could have diarrhea as bad as I did. I never had any pain, though. So no, I don't think you can determine the extent by symptoms.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).

Regular Member

Date Joined Jan 2009
Total Posts : 20
   Posted 5/20/2009 11:46 AM (GMT -6)   
I was diagnosed with fullminent ulcerative colitis and my GI told me he determined this by both my scope results and my symptoms. Not only did I have the typical  symptoms of tons of d, urgency and pain... but I my eyes were also bloodshot and my vision began to worsen. I have crohns as well... so the eye thing could have also been connected that too. I think the easiest way to determine the extent of your colitis would be to have a scope done though. good luck.
21 yrs old.
diagnosed April 2008 - have been in an active flare since. 
Prednisone - daily maintenance dose of 20mg. (4pills)
Salofalk - 4500mg daily (9pills).
Iron - 900mg daily (3 pills).
Calcium - 1000mg daily (2pills).
Allergic to Imuran and Sulfa drugs.
Have had 3 Remicade infusions.

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