Colitis versus Ulcerative Colitis

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notsosicklygirl
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Date Joined Dec 2008
Total Posts : 16736
   Posted 5/20/2009 10:34 AM (GMT -6)   
If you are given a general diagnosis of Colitis, is it curable?
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa at night + Probiotics + Iron - So far so good!!!
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/20/2009 10:35 AM (GMT -6)   
Well, I don't know! I guess it depends on what caused the generic "colitis."
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 5/20/2009 10:49 AM (GMT -6)   
I know that sometimes it is caused by an infection and it can clear up and never come back
Jessica 27/F
Remicade, Entocort 3/day, Rowasa ,
Apriso/4 pills
Citalopram 20 MG
Align


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 5/20/2009 12:14 PM (GMT -6)   
It depends on what caused it. I was given a diagnosis of UC, which is not curable (barring surgery); however, I'm not sure whether or not I really have antibiotic-associated colitis and not UC. While antibiotic-associated colitis is curable, my digestive system is quite messed up from having taken antibiotics for so long and for having eaten poorly for many years. (I know diet can't cause colitis, but it does contribute to colon health or in my case poor colon health.) As a result, I'm now at high risk for getting flare ups, especially if I have to be on antibiotics. So my case is not as severe as some others on this forum. I'll get a severe flare up, lose massive amounts of blood and blood clots, and then get into remission with fecal transplantation, probiotics, and diet.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Post Edited (subdued) : 5/20/2009 8:30:44 PM (GMT-6)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 5/20/2009 5:57 PM (GMT -6)   
I am wondering if mine is colitis too. I think my original biopsies showed UC but the newer ones said colitis. Is this because I am healing? Do the results of biopsies change based on whether you are flaring?
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa at night + Probiotics + Iron - So far so good!!!
 


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1916
   Posted 5/20/2009 6:14 PM (GMT -6)   
Good question! I wonder this about my situation. I was told in January that I had diverticular colitis and had to go on meds for a year. I am assuming they think my condition will be cured in a year. However, four years ago, I had a CT scan that said I had inflammation in my colon. I got scoped and they said it was normal. When they had me in the hospital, I was on IV antibiotics, anti-inflammatories and had to get steroids b/c I was allergic to the CT scan dye. Well, after I was released, my bowels had never been so normal but after 4 weeks, it was back to the old constipation tricks. For four years, I had problems, went back to see 2 GI docs who said it was just IBS. I got sick back in Dec of 08, had more tests and got the most recent diagnosis. So, I want to know what was all the inflammation back four years ago? I think I had UC, was consipated from the inflammation and then got the divertiulum from the constipation. The reason I think this is now that I take colazal, I am no longer constipated and do not have the pain I had in prior years. Over the past 8-20 years, I would have these episodes of horrible pain, diarrhea and bleeding and that is not IBS. THese would go away and only last a day. So, that's my story. I know that now I have diverticulum and colitis. I am scared that after I am done with the colazal, I will eventually develop colitis again. I guess time will tell. Sorry for the long post. It's a long answer to a short question. Be well....
diagnosed 1/09 with colitis & diverticulitis
 54 yo, colazal, fish oil, synthroid, cymbalta
good results w/ acupuncture


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/20/2009 6:41 PM (GMT -6)   
I have crohns and my GI kept mentioning colitis while talking to me. I thought he was confused so I politely corrected him, "oh, I have crohns, not UC." And he was like, right, I know, but any inflamation in the colon is referred to as colitis. It is a generic term, not a disease. So lots of people can have "colitis" or inflamed colon, for a lot of reasons that do not mean they have IBD. UC on the other hand is an IBD and chronic and incurable (except surgery). So after he explained that it kind of made sense.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/20/2009 8:15 PM (GMT -6)   
As usual the problem is with the majority of docs that do not offer enough info and casually throw terms around and apparently don't realize they are confusing their patients...there are tons of people at CD forums that are completely convinced they have BOTH UC and CD because of this, having both is quite rare, only 2% of IBD patients will actually have both...but they argue tooth and nail they all have both and I'm betting that most of them don't but instead have crohn's colitis which is simply CD affecting the colon, not the same as having both UC and CD.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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