Video - Diagnosis and treatment of IBS in the IBD patient - very interesting and my new doctor.

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kops2da
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Date Joined Jun 2008
Total Posts : 2865
   Posted 5/21/2009 8:55 AM (GMT -6)   
This is my new doctor (for consulation) at Albany Medical center.  This is very interesting for those with IBS AND IBD as I have and his method of treatment.  I think that I am going to have to try the "elimination" type diet to find out if any of the foods are making me feel worse. I see him on June 18.
 
 
ElaineNY
 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 
Now 75mg. and 15mg. prednisone for a week. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 5/21/2009 12:39 PM (GMT -6)   
this was good! Elaine your new doctor is wonderful - best of luck!
Right now -FLARING (after my Rubella vaccination)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly - worked for 2 months then re-flare
13 may: canasa 1000 X2 daily for 2 weeks - to start Lialda after 2 weeks if canasa double dose does not work
Symptoms: Mucus, blood, constipated (not always), Lots Gas
Also gifted with Hypothyroid & have calicum deficiency family history!
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09- stopped both on 10th May


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/21/2009 12:47 PM (GMT -6)   
It wouldn't work for me, the screen came up but the video wouldn't play.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


kops2da
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Date Joined Jun 2008
Total Posts : 2865
   Posted 5/21/2009 1:47 PM (GMT -6)   
Try this link.... http://elc.imedex.com/assets/5477/index.asp
Click on Saturday. It plays on my computer on Windows Video player.
 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 
Now 75mg. and 15mg. prednisone for a week. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 5/21/2009 1:49 PM (GMT -6)   
The slide vertion if you can't get the video - of course you can't see Dr. MacDermott but his whole speach is there..
http://vid.imedex.com/pdf/5477/macdermott.pdf
 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 
Now 75mg. and 15mg. prednisone for a week. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 5/21/2009 8:08 PM (GMT -6)   
Dr. MacDermott is on the right track. Many of the foods he mentioned that IBS patients should avoid are pro-inflammatory. However, he did not mention anti-inflammatory foods. Can you mention it to him when you see him? Thanks.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


kops2da
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Date Joined Jun 2008
Total Posts : 2865
   Posted 5/21/2009 8:22 PM (GMT -6)   

I am making a list of questions so I put that on it.  Yes, he is right on about IBS because I have had that many years and have come to know what affects it.  Talked to my NP who talked with my doctor here and I will stay on 10 mg. prednisone until I see Dr. MacDermott June 18.  He is very difficult to get to see so my doctor must have a "in" - I believe he studied under Dr. MacDermott in NY or Boston.  My NP is thrilled I am seeing him for consultation because she called him "world renowned".  I will not be able to see him for tests or often - just consultation.  It is too difficult for us to get there, etc.  As seniors we just don't travel well everywhere.  He has all my records from here and will be in touch with my doctor, of course.  I was told I could not have a very late appointment because new patients he spends a lot of time with - hope that is true.  Obviously, he is very interested in Crohns and Colitis patients.

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 
Now 75mg. and 15mg. prednisone for a week. 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 5/22/2009 7:57 AM (GMT -6)   
Thanks for posting that, Elaine. I know I have concurrent IBS and IBD and I feel that there is a two-way street of interactions- active UC activates IBS, while IBS seems to trigger UC as well - perhaps both due to the stress that the IBS symptoms create, as well as the imbalance to the bacteria inside when the digestive system starts to get more dysfunctional. It does say something for - cautiously- using certain IBS treatments to deal with mini-flares that we would otherwise assume are IBD, specifically when there is no bleeding.


Pancolitis >20 years, allergic to all 5ASAs
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up 
Remicade Humira, lots of probiotics, entocort, tapering pred again, maybe surgery this year
 
 


JoMarie
Regular Member


Date Joined Dec 2008
Total Posts : 55
   Posted 5/22/2009 9:39 AM (GMT -6)   

Thanks for posting that!  Very interesting...Good luck with your appointment with him-let us know how it goes!

Jo


quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 5/22/2009 2:18 PM (GMT -6)   
Great posting Elaine!!!

The doc didn't seem to state that IBS triggers UC symptoms.

q
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 5/22/2009 5:21 PM (GMT -6)   

I believe - as I think he does - that they are separate issues as I have had IBS for over 30 years.  Sometimes difficult to distinguish between IBS, UC and side effects from medication.  I am anxious to see what Dr. MacDermott recommends for me.

ElaineNY



 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 - staying on 10 mg. prednisone also until visit with specialist.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 

Post Edited (kops2da) : 5/26/2009 8:12:51 PM (GMT-6)


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1916
   Posted 5/22/2009 10:28 PM (GMT -6)   
That was excellent. He seems very smart and I like his approach to the IBS. Some docs are so unprofessional and ill informed about IBS but he was not. He was right on target with the foods too, wasn't he? lol... I have both IBS and IBD as well. Thanks for the link!!!!
diagnosed 1/09 with colitis & diverticulitis
 54 yo, colazal, fish oil, synthroid, cymbalta
good results w/ acupuncture


Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 5/24/2009 4:23 PM (GMT -6)   
I was diagnosed with IBS 20 years ago. When stressed I would develop symptoms. about 3-1/2 years ago I was diagnosed with UC. I thought I was just having IBS symptoms and the bleeding was from hemorroids. I was quite surprised when I was diagnosed with UC after my colonoscopy. Now I'm thinking my recent problems with D are from my IBS because I get the D when I get really stressed then it goes away (and no bleeding). Does this sound right? Should I talk to my dr. about adjusting my meds? I'm on colozal daily and procto-foam when I'm having issues. Thanks for the article.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30986
   Posted 5/25/2009 2:16 AM (GMT -6)   
Hi Disney....not all flares have bleeding.
You mention recent problems...could be signs of a flare, but just not with fragile mucosal tissue, enough to bleed that is...but you 'll know soon enough if it's continual or worsens.

Are you using the rectal meds at this time at a maintenance dosage or nightly?
q
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 5/26/2009 5:27 PM (GMT -6)   
Quincy,

Thanks for the response. I didn't know that some flares don't have bleeding. Here's an example of what I'm talking about. Yesterday I went to pay my credit card. I always pay it off so when it was a lot more than I thought it would be I immediately panicked...I had to run to the bathroom and immediately had a lot of D. By the time I reached the bathroom (a whole 5 seconds or so) I realized that I forgot that I paid the balance of our upcoming cruise which the money was already set aside for, but once I am down that road, I can't stop it. To me that sounds like IBS, what do you think? I wonder if other people respond to stress like this and immediately have to run to the bathroom?

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 5/26/2009 8:48 PM (GMT -6)   
The thing for me is that a bad IBS-like, purely stress-induced episode (I too have had it happen from messing up a credit-card payment by accident) beats up my gut like h*ll enough to start UC activity to bump up too... i..e in my view they can indeed trigger one another and are not simply two separate beasts in separate cages, so to speak, but rather two beasts in one cage- one can wake the other up.
Pancolitis >20 years, allergic to all 5ASAs
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up 
Remicade Humira, lots of probiotics, entocort, tapering pred again, maybe surgery this year
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 5/27/2009 9:07 PM (GMT -6)   

Thanks!  I briefly looked at it.  I have had IBS for about 30 years and know what to do - what to eat, etc. - just can't stick with it all the time.  I always have diarrhea and have never been constipated.  I do believe the probiotic Align has helped me the most.

As for UC - that is another story.  Nothing I eat or don't seems to make any difference in bleeding, mucous, etc. - that is why I am going to the specialist.

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 - staying on 10 mg. prednisone also until visit with specialist.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 

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