Does anyone else have this and have you found anything that helps? I posted on the GERD forum (no replies) and here some months back but I am always keen to compare notes with anyone suffering similar symptoms with the UC or Crohn's. A few months back I had an upper EGD done and it seemed to explain a chronic pain, frequently localized to a spot about
5 inches above my naval in the center of the abdomen right where the rib cages meet, although it can spread out to encompass parts of my stomach and lower abdomen- almost like it is fed by or feeds into the UC as well. I had always assumed the pain was some sort of especially ulcerative activity in my transverse colon, but it is apparently mild (though it feels anything but mild) gastritis and esophagitis, with patchy erosions, as well as a "Schatzki's ring". I had this pain a year and a half earlier and it didn't show at all in an EGD then- I guess persistent inflammation will eventually do its damage. Chronic prednisone use may well be a player, I know, but as I have come down to low levels of pred while using biologics (hopefully off them soon, otherwise surgery), the pain has actually picked up. Have many of you had similar burning pain? There is no reflux with this but right now the pain is as bad as my worst UC flare pain, even though the UC is for the time being (thanks to Humira and low dose pred) very mild, with formed stool and no blood. I am hoping that once I get off pred this will slowly, slowly abate but I fear this is just another
open-ended chronic ailment now. Prescript
ion PPI drugs are doing absolutely nothing for this, and so far neither has DGL, or the supplement 'heartburn free' (orange peel extract).
Pancolitis >20 years, allergic to all 5ASAs
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up
Remicade Humira, lots of probiotics, entocort, tapering pred again, maybe surgery this year