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Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 5/22/2009 7:28 AM (GMT -6)   
Hey all,

Today is the big day! I am getting the J pouch today!! I am really excited but really worried. I never had any kind of surgery before.

I have been in the hospital since Saturday night- three blood transfusions, lots of fluids, Picc line! I mean just crazy. But I'm all good to go. I need your good thoughts today. I'll up date probably this weekend because I'll be floating for a day or so!! :)

If you want to check out my hospital stay, check out my blog on my home page link... It could help.

Wish me Luck!
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)

Meds:Bump up every couple years... You name it, I've used it! Sulfasalizine, Asacol, Rowasas, Pentasa,
Remicade, 6mps... And now it looks like the once daily Lialda taken twice a day isn't enough...
Here comes Humera.


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 5/22/2009 7:41 AM (GMT -6)   
Wishing you a speeding recovery!
32 yr old female
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon?


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 5/22/2009 8:06 AM (GMT -6)   
Good luck with everything!
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Asacol enema occasionally
Spinach & sunflower seed diet / Juicing spinach and carrots


JoMarie
Regular Member


Date Joined Dec 2008
Total Posts : 55
   Posted 5/22/2009 8:36 AM (GMT -6)   
Sending thoughts of successful surgery and speedy recovery your way!

Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2081
   Posted 5/22/2009 8:49 AM (GMT -6)   
Good thoughts being sent your way... hope all goes well!
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/22/2009 9:03 AM (GMT -6)   
Good luck!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 5/22/2009 9:03 AM (GMT -6)   
Wishing you all the best for super quick recovery,Anna
41yrs old,mum of 3,servere left-sided UC since 2006,
Tried most things alternative,scd diet,low residue,etc
Had,ascol,pentasa,rectalmeds,prednisolne,IVsteriods,Cyclosporin
currently taking Imuran 100mgs daily,movicol 1 satchet daily


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 5/22/2009 9:37 AM (GMT -6)   
Sending good vibes and thoughts your way! Take care and update us on how you are doing when you feel up to it. ((((Hugs))))

Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 5/22/2009 9:42 AM (GMT -6)   
Good luck and be patient with your recovery. Recovery can be frustrating but it beats UC! Check in at www.j-pouch.org for advice, support, and help during your recoveries.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/22/2009 10:10 AM (GMT -6)   
I am sure all will go well. Congrats!
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


PinkPaperclip
Regular Member


Date Joined Mar 2009
Total Posts : 108
   Posted 5/22/2009 10:32 AM (GMT -6)   
Wow, I am sending you good vibes :) I'm almost jealous of you I'm so tired of being sick! Wishing u you a speedy recovery and keep us updated!
Diagnosed with severe pancolitis 03/09
Prednisone 35 mg, Imuran 100mg, 2nd Remicade infusion.
Mulitivitamin, calcium supplements, probiotics
Seroquel 12.5mg, Paxil 10 mg  (for anxiety, since 2003)
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 5/22/2009 11:20 AM (GMT -6)   
Thinking of you, wishing a speedy recovery.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 5/22/2009 5:53 PM (GMT -6)   
^What they all said^
:-)
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3-4X per week
Curcummin and Probiotics/Rueteri.
Bowel Soother and IntestiNew, Fish Oil, Calcium/Mag/Zinc, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Could never tolerate artificial sweetners
I try to excersice/swim daily
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 5/22/2009 6:06 PM (GMT -6)   
Here's to a speedy healthy recovery! May you start to feel better very soon.

--Mom of bratcat (18 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect! Living and loving life as a teenager should!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1907
   Posted 5/22/2009 8:22 PM (GMT -6)   
Good luck, Lisa. Please keep us posted on your recovery.
diagnosed 1/09 with colitis & diverticulitis
 54 yo, colazal, fish oil, synthroid, cymbalta
good results w/ acupuncture


Collicat
Veteran Member


Date Joined May 2009
Total Posts : 827
   Posted 5/22/2009 8:23 PM (GMT -6)   
All the best.....a lot of people are thinking about you!

quincy
Elite Member


Date Joined May 2003
Total Posts : 30366
   Posted 5/23/2009 12:37 PM (GMT -6)   
Hi Lisa......definitely a BIG day for you.  Hope the surgery went smoothly.
Sending healing well wishes your way!!!

I'll check out your blog.

quincy


*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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